blood with disconnected jpouch

Honey, call the doctor immediately!  You are bleeding internally.  You might want to get to the ER.  Anytime you see frank red blood, it's never good.

 

good luck and let us know what's happening.

It doesn't mean you're "dying" or bleeding out. It does necessitate a call to the doctor to see what direction they wish you to go. Don't panic.

Was it a one time deal?  Or has it been every mucus pass since?  I have a fistula, and sometimes there's blood, sometimes there isn't. Hemorrhoid of course can be culprits, if you have a history, even with an inactive pouch.  Did you do anything different recently?

Dr.Shen had me come in to scope me, he said dont go to ER. He was going out of town for 2 weeks but he would fit me in. I was the 27th scope/procedure he did on Wednesday. This guy is awesome. Before i was even sedated he said diversion pouchitis. And thats exactly what it was. My jpouch has been disconnected for 16 months due to a leak. This is the first time this has happened. No pain,no fever, just alot of blood. He sprayed it down with dextrose and plugged me up. Said remove the plug several hours later and i may see residual blood for the next day or two. He said it was good i caught him before he went out of town cuz the ER wouldnt have had any idea what to do with me. He said if the bleeding doesnt go away to do Rowasa enemas for a few days. I am scheduled in two weeks to have procedure scope with Shen to try and close this leak. If the leak is not fixed and this becomes chronic, I may need a pouch redo, or a removal and perm ostomy. I was trying to avoid both of those. We will see..

I am so happy you called your doctor!  And at least know what happened.  Happy to hear you are going to be okay.  This sounded so scary to me, and because we have gone through so many serious complications, I just knew something wasn't right.

 

good luck to you!  And don't forget to follow up with Dr. Shen.!