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You described the symptoms.  They are similar to pouchitis, except I don't think blood is a pouchitis symptom. I let things get so bad I had a stool full of blood before I saw my surgeon.  He diagnosed me without doing a flex sig scope and didn't take biopsies. Cuffitis occurs where your pouch is attached to your remaining bit of rectum. He missed  the c.diff infection I had as well.  I waited to see him for the 1 year check up.  He was great immediately after the surgeries and did a super job of helping me manage my diet, Metamucil and Imodium for several months.

 

Because I'd been educated by the members here I drove home and made an appointment with my local GI.  He did a flex sig, scope and discovered I had c.diff as well.  I was really ill and scared.  

 

Many surgeons care for their j-pouch patients after the surgeries. My surgeon is a wonderfully skilled surgeon, that was trained at the Cleveland Clinic. He's just too busy to handle the after care beyond the surgery follow ups.

 

I don't know if your surgeon provides the after care or how long it's been since your surgeries. I would still recommend going to your surgeon first. 

 

I hope you are feeling better soon 

 

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