Blockage help?

Has anything been detected on your scopes, like a stricture or something? How many blockages have you had in the 12 years?

I had 4 right after surgery and none in the 21 years since. However, an MRI Enterography last summer showed my bowel extremely narrowed above the pouch inlet, and the last time I tried to go off antibiotics cold, at the end of last July, I experienced blockage-like symptoms, which I suspect was due to the already narrowed bowel getting more inflammed and narrower. As soon as I resumed antibiotics, it passed. This area of the bowel cannot expand and hence cannot be dilated, as some strictures can be.

If your problem is physical, and it seemingly must be, it would definitely pop up on an MRI Enterography, and possibly on a routine pouchoscopy, but more likely on the former if the problem is higher up.

Some people have had good results withmyofascial release.

If your blockages are bad, talk with a surgeon about adhesion surgery. The problem with this, though, is if you form adhesions then additional surgeries may result in more adhesions. But if they know that that's the problem, maybe there is a surgical solution.

I hope you find a solution.

kathy

Thanks for the responses. CTBarrister; I'm not sure how many I've had in the past 12 years, but my guess is anywhere from 4 to 8 blockages a year. Most clear by thermselves after the area gets massaged or I use some other "technique." I have had to go to the ER a couple times over the years. If I get so sick I vomit, then I go to the hospital. Normally I don't require a trip o the ER. ER trip or not a "good" blockage wipes me out for a couple days. A blockage that clears out quickly isn't too bad on me. My scopes are always good, as well as my pouch, but the Doc says it's hard to tell if he gets as high as the connection site with the scope. I've never had an MRI. I might suggest that to my Doc. I'm not on any antibiotics or other meds with regard to my pouch, etc.

Kathy, I did speak with my Doc about surgery for adheions, but he says he would rather not do adhesion surgery if at all possible for the reasons you mentioned. I like the information on myofascial release. This is for clearng out a blockage that has already occurred right? I wonder if there is any kind of therapy to improve the area to lessen the chances of getting one in the first place??

Thanks again guys,

John

Myofascial release is for helping to resolve the adhesions, helping to massage them out of existence I would guess. If it works, that means no more, or fewer blockages. So it is to improve the area and lessen the chances of getting blockages in the first place.

kathy

Oh, OK! That's even better.

Thanks