Are you pooping???

Do an ultrasound of the gallbladder. I have the exact same things going on right now. I did an ultrasound and I have gallbladder stones and sludge in there. Doing something called a HIDA exam Tuesday morning, to see how it’s functioning.  I’m assuming it has to come out but praying it does not.  

Yea, my bowel movements are the same

Okay, i would call gastro at this point.

Im scheduling CAT scan of abdomen. Maybe that will show something

@Simonw posted:

Im scheduling CAT scan of abdomen. Maybe that will show something

Keep us updated

Hope you feeel better

A number of years ago, I had was diagnosed with Thyroiditis which affects the throat. Was treated with meds, went away and never had it again.
You may want to have them check that.
I’ve had quite a number of “itis’s” since my j-pouch surgery.

Good luck, I hope they find out what’s causing it.

slight allergy reaction? I had a gene panel done and it's been a godsend!

CAT scan was negative, blood work is also normal. Now he wants me to do  hydrogen breath test to check for SIBO. Have any one heard of it?

@Simonw posted:

CAT scan was negative, blood work is also normal. Now he wants me to do  hydrogen breath test to check for SIBO. Have any one heard of it?

I’ve heard of the breath test for SIBO, but I’ve never heard of SIBO causing a feeling of fullness in the throat. Does your swallowing feel normal?

Swallow is normal, tried some dexilant for a week but  no change,

Will try low fodmap diet now.

@Simonw posted:

CAT scan was negative, blood work is also normal. Now he wants me to do  hydrogen breath test to check for SIBO. Have any one heard of it?

Glad all of that was negative dear. Let us know how the Hydrogen test comes out.

Hpyroli negative, TSH was 7.8 then had it rechecked next week and it was normal. They still put me on synthroid. I have tried protonix and glycopyrrolate for 2weeks, still no changes. Still feel bloated and full in stomach all the time. I don't know what else to do !?

@Simonw posted:

Hpyroli negative, TSH was 7.8 then had it rechecked next week and it was normal. They still put me on synthroid. I have tried protonix and glycopyrrolate for 2weeks, still no changes. Still feel bloated and full in stomach all the time. I don't know what else to do !?

Glad some things are normal. I am sorry you still have that, hope things get better. Does the bloating hurt???

No it doesn't hurt, it just really bothers me, no matter what i eat or dont eat, still feel full and bloated, even after water, its been 2 months and still no change

@Simonw posted:

No it doesn't hurt, it just really bothers me, no matter what i eat or dont eat, still feel full and bloated, even after water, its been 2 months and still no change

I have been bloated everyday for 11 years in counting. If it is not hurting, do not worry about hon

So the ct scan showed wall thickening of the pouch suggesting pouchitis,  but it doesn't feel like pouchitis no diarrhea, no urgency, no blood, no leakage. But i do feel my like my GI track slow down, i used to take lomotil 5mg 3x day, now im down to 2.5mg 2xday. And have about the same number of BM. What the heck is wrong with me

@Simonw posted:

So the ct scan showed wall thickening of the pouch suggesting pouchitis,  but it doesn't feel like pouchitis no diarrhea, no urgency, no blood, no leakage. But i do feel my like my GI track slow down, i used to take lomotil 5mg 3x day, now im down to 2.5mg 2xday. And have about the same number of BM. What the heck is wrong with me

Definitely pouchitis, I definitely suggest antibiotics.

Would it slow down my digestive system?

@Simonw posted:

Would it slow down my digestive system?

If you do not drink enough water. But in reality, it depends on the person.

@Simonw What does your GI think? You could have pouchitis, but the symptoms are unusual for that. I’m wondering why you’re still taking any Lomotil at all - do you have *any* symptoms at this point that Lomotil is intended to treat?

Antibiotics often thicken the stool. I’d be surprised if they fixed up your bloated/full feeling, but surprising things happen all the time. I’d try stopping the Lomotil, first, just to see how your baseline functioning is right now.

Ive reached out to my old Gi i had after the surgery,  going to see him in 2 weeks. My current GI keeps asking me ,if it feels like a flare up. I say no because i have no diarrhea or bloddy stool. But i do have some discomfort in pouch area if that makes any sense.

As to lomotil i dont know, just got used to talking it for so long, tried stopping it few years ago but it didn't go well. I try stopping it nowand see what happens.

I just dont know what to think of it anymore. Whats making me feel like this. Did i get crohn's and it took over my whole GI.or Any other problem

Try tapering down from lomotil. Over time your need can lessen as your gut adapts to pouch life. Antibiotics definitely slow and thicken. A suggestion of pouchitis on imaging is not definitely pouchitis, just a maybe. Hopefully you will get more enlightenment when yousee your old GI.

When I was on antibiotics I had to cut way down on my loperamide because of the stool thickening.

Jan

@Simonw posted:

So the ct scan showed wall thickening of the pouch suggesting pouchitis,  but it doesn't feel like pouchitis no diarrhea, no urgency, no blood, no leakage. But i do feel my like my GI track slow down, i used to take lomotil 5mg 3x day, now im down to 2.5mg 2xday. And have about the same number of BM. What the heck is wrong with me

Was your pouch normal in size on the scan? I don't wish to sound alarming, but I am asking because bloating and a feeling of fullness in my lower throat were the signs I got with megapouch. (Pouch becomes distended because the bowel used to construct it loses muscle tone.)

I felt as though things were backed up to my tonsils – obviously that wasn't the case, but that's how it felt.

But megapouch is very rare, less than 1% incidence.

Stopped the lomotil, have more BM but still have the fulness/ bloated feeling all the time.

@Simonw posted:

Stopped the lomotil, have more BM but still have the fulness/ bloated feeling all the time.

Maybe the bloating will be your new normal. Glad your feeling better at least. Can you cope with the bloating?

Penn State has a great doctor that treats SIBO. My husband goes there 1/2x a year.

Definitely cannot deal with bloating, i just feel full all the time, not feeling hunger even if i dont eat, SIBOand h pyroli was negative .

@Simonw posted:

Definitely cannot deal with bloating, i just feel full all the time, not feeling hunger even if i dont eat, SIBOand h pyroli was negative .

I am sorry you cannot deal with bloating. I have been bloated for 11 years so I am use to it. I hope your bloating gets better hon.