Bleeding, Joint pain and Cipro?

BodaMember

My daughter had a scope and the results
were mild inflammation in the cuff
Eosinophils in the pouch. The surgeon
said over all it looked healthy.No fissures, hemmeroids, hematomas, no sign of Crohns and no signs of inflammation but have the GI look it over.
She has had intermitten bleeding since takedown and now her knees have been hurting again. Her knee pain disappeared after her colectomy. He dialated a small stricture and said he thought that was causing the blood. But after six days the blood is back.
Our GI came back from vacation and looked at
the biopsies and put her on Proctofoam. After three days she began to bleed more so they said stop administering it. the GI then wrote a prescription for Cipro.
Why? Does she have pouchitis? Are her
knees hurting because of the eosinophils?

9/5/149:29 PM

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desisn00psMember

Cipro is often used for pouchitis but that doesn't mean your daughter has pouchitis. Her GI doctor and/or surgeon would be the best people to make the diagnosis. As far as the joint pain goes, joint issues are oftentimes an extraintestinal manifestation of IBD. You can consult a rheumatologist further about this further.

9/6/142:07 AM

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TE MarieMember

The inflammation in her cuff and subsequent bleeding could mean she has cuffitis or UC in her rectal cuff. This is the residual amount of rectum that most surgeons leave to staple the pouch to during surgery. You can still get UC in those few cm of rectum. I have cuffitis. The treatment for it is usually Canasa or Anucort suppositories.

If she still has problems or they come back after the Cipro I would take her back to her GI. What kind of scope did her surgeon do, a straight quick one or a flexable scope similar to a colonsocopy with biopsies?

9/8/1412:22 PM

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BodaMember

Thanks for responding. She had a scope with
Biopsies. The biopsies came back as mild colitis in the cuff and eosinophils in
the pouch. She is currently on a short dose
of Cipro. Her knees are hurting again
and that is what I am concererned about
too. She had knee pain before but it
disappeared with the colectomy.
I am baffled that she has bleeding and
knee pain without a lot of inflammation.

9/8/146:45 PM

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LjzMember

Boda, I had arthritis that became worse as my UC increased. My rheumatologist put me on Sulfasalaxine for it, but I know that drug also helps UC inflammation. After my second surgery, when my rectum was trimmed down to "cuff" status, my arthritis went away! My surgeon said it might, and hoped it would. It is coming back slowly now that surgery was 8 months ago. My team said perhaps going back on the Sulfasalazine would help with whatever flare I have going on. I have
Pouchoscopy this week, and will discuss that drug once my GI sees what's going on. I didn't want to take it until after the scope. Perhaps that's a possibility for your daughter. Good luck! Laurie

9/8/149:10 PM

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desisn00psMember

Agreed, Ljz, my docs have said the same about arthritis. My pouch has mild inflammation as well but I have still developed severe arthritis, e. Nodosum, PG and fistulae. I asked the same questions as you. Unfortunately, it is just the nature of the disease to attack other areas also and not just the pouch. Ask your GI about Sulfasalazine but make sure you take folic acid with it as the sulfa drug will affect the folic acid levels.

9/8/149:29 PM

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BodaMember

Thanks for responding. It completely
disappeared after her colectomy and
now it is back. She doesn't have swelling
or redness just pain.age had a scope a couple
of weeks ago and had just some mild
inflammation she has been on Cipro
for three days and her frequency and
bleeding are better but not her knees.
What does everyone do about this problem?we
did try Colazal but it didn't work.
Is there anything else we can do?

9/9/146:20 PM

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desisn00psMember

Well, from what I was told, Sulfasalazine is in the same class of drugs as Colazal and it works for IBD and arthritis. Might want to consider that.

9/9/146:38 PM

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