Bleed when run and have a 3cm pouch ulcer

Former Member

Hi
I've only just joined.
I spend the bulk of my time in denial trying to ignore the fact I have a J-pouch, which apart from a lot of trips to the loo is not actually that difficult.
Over the last 3 years I've found after a 30+ minute run I have quite a large amount of blood come out of my bum when I first go for a visit when I get home.
Earlier this summer while training for my second Ironman Triathlon(11hrs 51 min - did first one sub 11 hrs back in 2007 with an ileostomy) this happened a lot and my ferritin ended up low and I was at the bottom end of normal for my Haemoglobin (UK spelling).
I gave in and got scoped yesterday. This has shown a 3cm sloughy ulcer in the pouch. Cuff and anastamosis all OK. Biopsies taken and results awaited.
Anyone got similar experience and/or advice? (other than stop running!)

10/24/121:16 PM

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honestyisthebestpolicy (Guest)

I remember getting an ulcer too. It was long ago though, so I can't recall the exact details from it. Anastomosis, does sound familiar to me though. I do remember my ulcer was corrected though through surgery. I've had no problems with it since then.

10/24/121:24 PM

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Former Member

Hi
Can you remember what sort of surgery it needed to sort it out?

10/24/121:26 PM

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honestyisthebestpolicy (Guest)

All I remember is even though my surgeon cut into my abdomen again, recovery from the surgery was a lot easier than recovering from J Pouch surgery. It was all a matter of letting the incision heal at the time. I'm sorry but this surgery had to be somewhere over 20 years ago. After all these years besides the scar, there are no side effects to speak of.

I did make a note of it from back then and it says "5-90 exploratory laparoty lysis adhesions restriction loop perforated ulcer"

10/24/121:43 PM

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Laurie49Member

Jimmy, there will be others that will post who have had more recent surgery. I am sure much has changed in 20 years and what you have to go through may not be bad at all. Hang in there!

10/24/124:17 PM

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honestyisthebestpolicy (Guest)

quote:
I am sure much has changed in 20 years and what you have to go through may not be bad at all. Hang in there!

Much might have changed but at the same time too, so much hasn't. For example J Pouch surgery is still in existence.

10/24/124:18 PM

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SubzeromamboMember

Jimmy, I did a search here under j pouch ulcers and found some informative old posts. People talked about symptoms and treatment. You might want to do your own search. Ulcers do not seem to be rare and most posters said they were treated with a course of Cipro.
I had not heard of j-pouch ulcers before but I am glad to hear they are treatable. Could the bleeding be due to the ulcer?
How much blood is it?

10/27/1212:16 AM

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kereenMember

I frequently have pouch ulcers and my doc treats them with hydrocortisone suppositories. Several folks have posted here that they bleed after running, not sure why but you might want to do a search on it. Good luck!

10/27/122:15 AM

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