Just curious of the dysplasia your doctor found in your anal canal. Did you have a rectal cuff or hand sewn pouch with no cuff? What about a mucosectomy?
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Katey,
It has been 32 years since my original surgery. At that time, Mayo Clinic was doing a straight hookup with no pouch. I believe it was hand sown with a mucosectomy. I had an S pouch installed two years later to help reduce frequency problems. Things went reasonably well for many years until a malignant polyp was found in the anal canal in 2007 and was successfully resected. Dysplasia was found in this area last December and removal of the pouch and an ileostomy recommended. It also appeared that the surgery to remove the malignancy may have damaged the sphincter muscle since stool retention became more of a problem. It is also likely that a small amount of rectal tissue was left at the anastomosis site at the time of the first surgery, and this may have prompted the dysplasia. I strongly wanted to avoid the bag and its lesser quality of life and opted for a BCIR. If you are facing surgery relating to dysplasia, be sure to get good medical advice and research your options. Please feel free to send me a PM.
Bill
It has been 32 years since my original surgery. At that time, Mayo Clinic was doing a straight hookup with no pouch. I believe it was hand sown with a mucosectomy. I had an S pouch installed two years later to help reduce frequency problems. Things went reasonably well for many years until a malignant polyp was found in the anal canal in 2007 and was successfully resected. Dysplasia was found in this area last December and removal of the pouch and an ileostomy recommended. It also appeared that the surgery to remove the malignancy may have damaged the sphincter muscle since stool retention became more of a problem. It is also likely that a small amount of rectal tissue was left at the anastomosis site at the time of the first surgery, and this may have prompted the dysplasia. I strongly wanted to avoid the bag and its lesser quality of life and opted for a BCIR. If you are facing surgery relating to dysplasia, be sure to get good medical advice and research your options. Please feel free to send me a PM.
Bill
Thanks for the info. I also had my surgeries at Mayo, on year 24 with pouch, and I thought without a rectal cuff there wouldn't be a problem with dysplasia/cancer later. I have some kind of mechanical issue or something going on but can't seem to find anyone around me with pouch experience. Guess I need to go back to Mayo sometime for a check.
Katey,
I don't know if you got my PM yesterday, but I've been there, done that and would like to answer your questions the best I can. Please call me at (715) 420-0087.
Bill
I don't know if you got my PM yesterday, but I've been there, done that and would like to answer your questions the best I can. Please call me at (715) 420-0087.
Bill