Hi. I had a colectomy, j pouch construction & loop ileostomy formation in July, 2014. It's been rough. For some reason I have severe pain between the evening and mid morning hours daily. Thru the day it abates. During the time it's severe, a combination if one Vicodin 5/325 & one 800 mg ibuprofen relieve it. My j pouch also leaks continuously even though it's not technically in use. My surgeon calls this diversion.
This week I had a flex sig to evaluate my pouch. The surgeon found a structure & manually dilated it. I bled & had severe pain for 2 days after. Now I am back to normal- as described above. I see him in the office next Friday. Then he wants to do a gastrograffin study too. All this delays my re attachment surgery.
I feel a little discouraged by it all- especially the chronic pain I have developed. My entire life I have never needed regular pain med use . The long term affects ( stomach ulcer, dependency) concern me.
Any advice & or encouragement would be appreciated. I also have a "bad ileostomy" according to the WOCNs here. Most have a he in the center like a donut. I guess mine fell so the whole is below & drains down ...so under my wafer it leaks & I have a constant raw, bloody, painful area right below my stoma despite lots of brainstorming & attempts to try different dressing products ...Sometimes it leaks & burns after each meal..,
I have 3 young children & am back home caring for them. My husband is loving & supportive ...but we feel weary & wonder-"Is there an end in sight?" I have read about a Koch pouch- it looks attractive to me. Sometimes I wonder if I should go for that instead of j ouch reattatchment?
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