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After 25 long years I’m seriously considering removing my j-pouch and switching to an ostomy.  My surgery would be complicated because my j-pouch was redone in 2001 and I have lots of scar tissue.   I had seen (and loved) Tracy Hull but she is now retired.  I’d love to hear suggestions.  The surgeon I consulted here (in San Francisco) said she would not be comfortable removing the pouch due to scar tissue but Dr. Hull said it would definitely be possible.  And I don’t want to keep it if I’m going to an ostomy.

Any surgeon recommendations (any location) appreciated.

Thank you.

Original Post

I had a J pouch for 30 years that had to be remove4d due to high risk of cancer.  Although an ileostomy was recommended. I strongly did not want one.  I was aware that options not requiring an external bag existed and was able to get a continent ileostomy that has given me a good quality of life for 11 years,  I wrote an article entitled, "Researching My Options" that was published in UOAA's magazine, The Phoenix.  This article can be viewed on the Quality Life Association.s web site (www.qla-ostomy.org) under the  Ostomy Options and Education tab.  Please feel free to send me a PM if you have any questions. I can also give you my thoughts about surgeons who can handle complicated situations.

Last edited by BillV

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