I was told that the radiation I had for the colon cancer damaged my jpouch and the muscles around it. Was told can not redo jpouch because of the radiation. So I was told only thing to do is a ileostomy to relieve the pain and the 20 bowel movements I have a day. Any one else ever have a pouch redo after radiation.
Tim
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Did anyone suggest to explore BCIR or Koch pouch? Most Dr. don't mention that option.
Ray
Tim.
I had my pouch removed after two plus years of problems.
Now if you can go a different route... Yes... I would have my self.
I was more or less terrified to have to have an ileo the rest of my life.
But after a month plus I find it was the right choice and I can live with it.
Now... I am near 60 yrs old. Didn't want to spend years trying different things. But if you are a young man I would explore my options. Otherwise an ileo eliminates... Well it did for me.... Eliminated all.... ALL... Of the problems I was having.
Of course I have quite an adjustment to make but I feel it is coming along better than I would have ever expected.
And like I said I was terrified to do this. Because there is no return.
I would explore the other options.. K pouch... Bcir... These were not right for me. It got to the point in the last few weeks I did just want it out. It was wearing me out.
There will be more advice coming. But if the ileo is your option. Don't be afraid. I was for nothing.
I wish you the best.
Richard.
I was told neither of those option would work for me because of the radaition damaging my insides. I have talked to cleveland clinic and they basically said same thing. So starting to sound like if I want pain to go away it is bye bye j pouch
The docs at Cleveland Clinic have seen it all, and if they say you are not a candidate for a redo, I would believe them. I am sorry to say this, but sometimes you just have to accept the realities. Getting rid of intolerable frequency and pain seems like a good outcome, even if it means ileostomy.
Jan 
