I have 3 strictures....2 in terminal ileum and 1 30 cm above my pouch. All found in a pouchscopy. The one that is 30 cm above my pouch is suspected to be due to scar tissue, possibly, from the loop ilestomy. I have had partial blockages my gi doctor and, now, surgeon, feel a barium enema would allow them to know which stricture is the problem (even though the doctor that did the recent pouchscopy) notated that he feels the one from my ilestomy is the trouble maker.
So, i went to get the test done, cleveland clinic but not main campus, and the doctor to do the barium enema said he wouldn't do the test....he said enough tests had been done and wasn't worth the risk. I just had a call with the surgeon and she insists they need to do the test but she is pretty "new", which makes me nervous.
So, i have had 4 pouchscopies in the past 6 months.......routine one, 2 to dialate the 2 stricutures in my terminal ilieum (august 2024 and oct 2024) and then the one 2 weeks ago that found the 3rd stricture. And, I have had 2 cat scans....most recent one was 3 weeks ago.
I don't want this barium enema and everything i have read says not "preferred" test anymore.
Any opinion on this? I am so sketchy with doctors. I asked the surgeon was the alternate test to the barium enema and she said a drinking test that takes 6 hrs.
