Desisn,

Although it has been over 35yrs I still remember it being difficult to heal shut. 

They did not suture it completely but left it partially open and draining plus a hemovac to remove all of the accumulating fluids.

It was rather uncomfortable and I felt constant pressure and urges.

It took +/- 2 full months. I sat on an inflatable ring and used ice packs in the middle of it to reduce the swelling.

I still get pressure down there and a sudden feeling of having something in there that wants to come out...occasionally I swear if I push hard enough something sharp and pointy will be pushed out. (feels like they forgot something in there...phantom pains?)

I used to get those sudden urges that made me feel like I was about to have an accident and would break out in a cold sweat...that passed within months too.

35+yrs later I still dream 'it'...but now wake up clean. Nice.

I have a lot of scar tissue down there on the outside, not sure why or how it was sutured but it is not pretty (then again, no one is really looking)...after a certain amount of time you can take sitz baths to help sooth it and heal better.

You have lived through the hardest part, just a little while longer and it is over and just a memory.

Sharon

Thanks so much, Sharon.

I'm going to Cleveland and Dr. Shen is going to try injecting D50 to help scar the area to close it. Plus, I'm going to keep having the area curetted by the surgeon. Let's see how that goes otherwise maybe a wound vac or God knows what else. I've been having extraintestinal manifestations again and am being told there is IBD in the wound (lovely!)...I'm pretty scared of all this but am really hoping for the best!

If anyone has any other thoughts, I would appreciate it!