After months of severe agony following take down with toilet trips 20+ Daily, weight loss, unbelievable butt burn, chronic insomnia and poor quality of life, the decision has gracefully been taken out of my hands to go back to an ileostomy. My surgery is scheduled for Monday and whilst I'm anxious, I'm at peace with the conclusion.
I do not regret going for takedown, it just sadly didn't work out well for me. I'm at peace now and know my days existing like this are coming to a hopefully good conclusion. That is not to say that anyone considering takedown should pause for thought and reconsider; we are all different.
My surgeon discovered that I have extensive scarring in my pouch along with a long rectum (I think he said 6cm but regardless, he said it shouldn't be that long) which is no doubt the root problem of my issues. The scarring no doubt was due to sepsis after the second op. He's hoping to give me an end ileo but to be honest with you all, he could create a Stoma on the top of my head for all I care now! I think I may be metaphorically holding my hands over my ears whilst shouting "la la la" as the thought of more surgery is scaring me so much.
I therefore ask for any advice you can give me for getting through this next surgery? I have been given an injection to self-administer on Sunday (blood thinner) and some pre-op drinks (which are disgusting if I recall). Have any of you had a jpouch only to go back to an ileo due to situations like mine? And more importantly, can I still be a member of this forum? I know it probably appears that I am a taker of advice, rather than a giver 
I wish I was in a position to offer good sound advice whilst being a poucher, but to be fair, my pouch seemed determined to be my nemesis and we do not cohabit very well!
In the meantime, I wish you all well xxx
