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Hi there,

 

It has been a few years since I posted to this board. I was diagnosed with UC in 1995, had a total colectomy in 1998, and take down in 1999.  For the first ten years, I was loving life, but as I've got older, I have more issues with scar tissue pain and pouchitis. 

 

I recently moved to West Palm Beach, FL and I looking for a support group or individuals with j-pouch and\or UC.  I need to build my own person support group and become less isolated from the world!  So, if you live anywhere near me, and want to get together for a chat, please reply to this message.

 

Cheers,

 

Rowan, 

Original Post

We are in northern Florida - however  my husband has had pouchitis too - he does not take perscription medication when he gets hints of it now - he takes a very strong probiotic twice daily - I mean 50 to 70 billion per capsule - it works for him. He also avoids his trigger foods too to avoid the dreaded sting he often gets.

 

nancy 

boots123cook@yahoo.ca

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