Anyone have experience with Peritoneal Inclusion Cyst

I've had them. Had one drained via CT guided drainage. Another one has just been left alone. My CC surgeon didn't want to touch the last one because he though he could cause more problems.

I would be wary of your local surgeon if Dr.Shen, aka the jpouch guru of the world, told you to get the cyst taken care of first. He may be concerned by the location of the cyst and proximity to the jpouch? He is the one that deals with all kinds of problem patients AFTER their takedown. He knows what kind of stuff can happen. Better to be safe than sorry.

Possibly you can request thru Dr.Shen a surgical consult at CC regarding the cyst and takedown? If you go back to Dr. Shen to request a surgeon to take on your daughter's case you will get a faster response than just "cold calling" CC colorectal surgery.
good luck

Thanks for your response. She did just go for a 2nd opinion at another local hospital. The GI referred us to a new surgeon. He mentioned trying the drain again or doing open surgery to remove the cyst.(It is huge; 10cmx14cm, on both sides of her pouch) He left the decision up to my daughter and she decided to try another drain Since then, the reading I've done shows a 30-50% recurrence after surgery and a 50% recurrence with the drain.

Dr. Shen, at the time, referred her to a CC gynecologist, not a surgeon, to decide what to do with the cysts, as she also had a large ovarian cyst, which we think has resolved. It is unclear whether one drain will reach the entire peritoneal inclusion cyst. Did your cyst return after draining? Do you think you have symptoms from the other cyst?