Hello all, I had my reversal surgery in January and am now working on chronic pouchitis. I tried several rounds of antibiotics and that worked for a couple days and then the pouchitis returned with a vengeance (also, pro tip for any weightlifters, don't try to hit your 1 rep max when on flagyl or cipro as you might blow a tendon). Currently I'm taking VSL3 DS, double doses of humira (I was already taking this for spondylitis), and budesonide. I've been on that regime for a month. At least one of those things is helping, but I'm still having frequent diarrhea, abdominal cramps, and 1 or 2 bloody BM's/day. I've been seeing those commercials for Viberzi for IBS-D. It is a recently FDA approved med and is supposed to help with abdominal pain and diarrhea. I know its intended for IBS patients, but do any of you have any experience with this med? I'm considering asking my GI, but would like to get some real-life feedback first.
I'd welcome any other suggestions as well. Thanks.