Anybody on SCD or grain and sugar free!

Most people with severe pouchitis won’t get better with diet alone. Has he tried standard antibiotic treatment?

Hi Scott- yes he's done several courses now and nothing has helped. We're going to give it a go along with vivomixx and see what happens!

It's normal to feel horrible in the first few weeks of the SCD diet.  If the symptoms are too much, do a slower wean off of the illegals.  After you get through the die-off phase you'll start to feel so much better.  I have been doing SCD for about 9 years and I think it's kept me from biologics and long-term antibiotics.  However, with that said, I don't know if it will help the pouchitis while you're already in a flare.   

Also, it really helps to understand the science behind the diet and why the strictness of it all is so important. 

It's not a miracle cure and it can take a while to see improvement, but overall I think it's been great for my pouch function.  I did feel significantly better and have had long stretches with no pouch symptoms whatsoever.  (I have not been entirely problem free though!)