Hi all - just got scoped today. I'm a veteran poucher - 30 plus years. I've been feeling unwell. So, scope showed an ulcer in stomach and doc said biopsied stomach ulcer and suspects h pylori infection. Also have a "hypertrophied anal pappillue" - which she says is not a polyp (how does she know without biopsy?)sorry if spelling is wrong - at anus. Said nothing to worry about. Rest of scope was clean. I know this is a "small problem" in the picture of what we all go through - but my symptoms have been driving me nuts for about 3 months - nausea, yellow/green diarrhea (not my "usual" diarrhea) - always - every single time, some blood in stool, pain in abdomen. Tired and run down....my blood work does not show anmenia...so why would I feel tired? Any advice or tips if you've dealth with this would be great - I don't know for sure that it is h pylori - I do remember my mom went through this years ago - she does not have a pouch -but was really sick. She is really not the person for me to ask as she is quite old and it will only upset her if I tell her anything about me feeling bad. Thanks to all.
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H. pylori ulcers can make you quite run down and create widespread GI symptoms. H. pylori is a common cause. I hope the doc started treatment for it.
A hypertrophied anal papillae is just an anal skin tag. Usually it is due to an old hemorrhoid. They can become inflamed, itch, etc., but are not serious.
Jan
THANKS Jan - knew you'd come through when you got to it. What would I do without you? No- she didn't start treatment yet - scope yesterday - said she biopsied ulcer area - and then would start if positive. I did see on the photos/notes that she called the area pyloric? or something like that...so my hope is to get meds early next week. I have not felt this run down in a long time - just not able to do much of anything - and I thought I was going a bit nuts - as in, "magnifying my symptoms" needed to "suck it up" etc. - hope the meds work - did my bit of online research - standard medical establishment protocol, etc. - just want to start and hopefully knock it out in 2 weeks. I guess I'll buy my yeast infection cream too ha! My poor husband - how does he put up with it? He's Mr. Energy and full of zest, zip, etc. - and so it goes - you know all about all this. Thanks for listening and for the information. You should be glad you live in California and I live in Texas - I'd be at your door driving you nuts if I lived near you. Now, I can just do so online. I know I say this always, but I just cannot thank you enough for your help. It sort makes me weepy - I just feel like I have someone out there who can give great, succinct answers and pass by a lot of the bullshit. And, then you have moi - chatty Cathy, rattling on. Be glad for yourself there are many miles between us Gotta laugh at myself and this never ending nonsense.
Funny Angie! Happy to oblige. I always wonder why doctors either talk in overly simplistic terms or jargon. Why not give the jargon, then explain in lay terms? Save a lot of anxiety. Also, why do they give you a detailed explanation when you are coming out of sedation and will have amnesia in an hour? Write it down for cripes sake. When I had my ablation treatment for a cardiac arrhythmia my cardiologist told me the diagnosis in the OR--- Three times! She finally wrote it down on a piece of scrap paper and handed to my husband when they brought me to recovery. She said I kept asking over and over. If she had told him, he would not have remembered it. I had zero memory of any of it. It was not on my discharge papers...
Jan
Oh - how right your are - nurses know! Did your ablation work the first time? I sure hope so..my Dad had 3? or so - this went on and on for about 10 years. Then, finally, a new drug came out and he stays in beat all the time. Drove the man nuts. And this is, like you, after living with pouch and surviving colon cancer and working until he was 70 and all the rest of it - he went into afib/flutter after his bypass, which he has at age 60. It was "so uncommon" to have this post op flutter they said - ha - as we know, not true. On the upside, he is 79 and has enjoyed many years post retirement doing things he enjoys - and he has a pretty damn good attitude after all he's been through. He gets depressed, sure- but he has a wacky sense of humor that pulls him through the darkest times. Please, let me get my mother's very healthy heart - she's never had a thing wrong with it. She travels all over and Dad stays home (after 56 years of marriage - I think that's just as well). You are so right about them telling you stuff post anesthesia and then....they sort of waltz out (know they are busy) and of course, I would have asked, "how soon will I know?" "when will I get the meds?" and several other questions. Now it's wait - again - and feel lousy. Loving falling apart as we age. Pouchers get a head start on the whole thing - so it sort of gives us a leg up on the joys of an aging body. Jan, you are a gem! Get off this thing and go play in your flowers - if you feel up to it! You have saved many of us out here from sheer terror and upset many times. Thank God you are out there. Take care.
I didn't have atrial fib/flutter. It was AV reentry tachycardia. Ablation seemed to work.
I'm relaxing today, looking at the web while watching TV.
Jan
Good for you - relax and surf web etc. - my gosh do you deserve it for all you do for us out here in pouch land. Take care, Jan
Don't know if this has already been mentioned and I failed to notice but diarrhea can lead to a loss of electrolytes and dehydration; this is probably why you're feeling run down.
Thanks - I am trying to drink tons of propel, water, powerade, gaterade, etc. - doing all I know to do. I am still functioning - just not well....I know to go to the ER if I need IV fluids - watched my Dad do this many times as he aged with the pouch. I just want them to figure this out and please God let me be able to take something to fix it. Now, I wait. Thanks for your advice - really, when you feel this bad, it just helps that anyone "out there" answers your question - it makes me feel less alone. Thanks.