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At my follow-up appointment today with Dr. Varma at UCSF, who is ranked by her peers as one of the top colorectal surgeons in nation, I asked how much of my rectal cuff was left in tact.

Her answer was none. Or more realistically, as little as possible, which was less than one centimeter. The reason? To avoid UC of the cuff, a.k.a. "cuffitis." She pointed on a diagram to where the cut had taken place, and it was pretty much right at my anus. She told me that leaving the rectal cuff in tact is almost never done anymore, which negates the need for the "scraping" or "mucosectomy" that people on various forums keep asking about.

I referenced a study from 1992 (twenty years ago) that discusses the necessity of the rectal cuff to continence. She said that strategies have come a long way since then, and in recent years in particular the newer stapling techniques have made a big improvement in the way they go about constructing and attaching J-pouches, and that is likely what has made the difference.

Either way, I can't believe that she would be so revered/respected if she was making a practice of leaving her patients incontinent, so I trust this surgeon, and she says that the rectal cuff is no longer necessary for continence. I will let you all know how continent I am after takedown. Razzer
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I had mild/moderate ulcerative proctosigmoiditis for about fifteen years before it spread to severe pancolitis.

It's pretty tough to imagine the amount of blood I got in my worst UC days coming from just 1.5cm of cuff left?! But I had a LOT of blood loss from UC - maybe yours wasn't quite as much? Otherwise I don't see how anyone could last long-term like that...

Anyway, the original post was just in response to some discussions that came up a few months ago (and seem to keep re-appearing) where some people were saying anyone with a j-pouch has cuff left or they would be incontinent; people asking about whether to have their mucosa scraped, ect. So I was just letting people know that they don't need to worry about mucosectomy, scraping, or the quality of their cuff since surgeons don't make a practice of leaving the cuff in tact anymore... of course this surgeon is at a leading teaching hospital where the latest techniques are practiced. I'm sure it's possible that some surgeons are not on the same page or have not caught up to this yet.
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