Skip to main content

I was very fortunate to get an appointment with Dr. Bo Shen at Cleveland Clinic on very short notice. CC is a 6 hour drive for me, so he fit me into his schedule for an endoscopic procedure the following day where he made the abscess part of the j-pouch and also scoped into small intestine which looked normal. A 45 minute procedure with no sedation! I drove home the same day. Love this guy! He has a wonderful personality.

He also told me that the infected mesh implant that I have is most likely causing my navel fistula and that he does not think I have Crohn's disease (as my original surgeon thought I did). He said that the mesh must be removed and set me up with a colorectal surgeon next week. This will be major surgery and may result in a temporary ostomy depending on what they find. But Shen is optimistic that my pouch can be saved and that I will be much better getting the mesh out.

Richard

Replies sorted oldest to newest

Jan, I was back at CC this past week and discussed the surgery with Dr. Jeremy Lipman a colorectal surgeon. I had a fistulagram done that showed that the fistula was not connected to the j-pouch but the small intestine. Dr. David Krpata (who I also met with) would do the mesh removal and Dr. Lipman would deal with the fistula with a possible bowel resection and temporary (hopefully not permanent) ileostomy. 

Catinthehat

Pouchomarx, Yes I had an incisional hernia below my navel related to the j-pouch surgery. The mesh repair was about 7 years ago. While it would be unfair to blame my problems (I also had a badly infected abscess after the first surgery) on my original surgeon, I feel like I would have had a better outcome if I'd sought out the advice of CC doctors in the first place. Instead of questioning, I took the advice of my regular doctors. 

Catinthehat

so are you/they thinking that the mesh caused the infection which led to the fistula? how soon after the mesh repair did you notice issues? or do you think this was all caused from the infected abcess? .. I know Dr Shen was not happy that I got a mesh repair for my hernia but I also knew the success rate without mesh is very low and I wanted to minimize my chances of further surgeries

Pouchomarx

The mesh has not been a problem for 7 years, at least that I was aware of, until the fistula appeared quite rapidly, about 6 weeks ago. Dr. Shen thinks that it is due to the infected mesh and the pouch abscess is a separate issue. (Correct, Dr Shen does not seem to like mesh.) I have also been on Azathioprine and before that prednisone for other auto-immune problems. These drugs may have lowered my resistance to problems with the mesh. 

When I have the mesh removed, I don't know what prevents another hernia. Anyone have thoughts on that?

Richard

Catinthehat

Well, hopefully enough time has passed for signifigant scarring to develop so that the abdominal wall will have enough strength to hold together without the mesh. For me, the incisional hernia was not much of a surprise after prolonged illness with UC and nutritional deficits. Plus I was on high dose steroids at the time of colectomy. My mesh repair was 21 years ago. So far, so good.

Jan

Jan Dollar

Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×