I just have a question. I had an illeostomy done back in April of 2013. And afterwards I was still having a lot of activity from my bottom. My surgeon told me that will slow down in time which it has instead of going about 5 times a day I go 2 or 3 times a day. So I'm obviously still having nastiness from the bottom end. So my question is this. I want to have the jpouch done and I know for awhile it's gonna be uncomfortable and possibly painful but when they do they jpouch and I have that waiting period for it to heal inside before they remove the double illeostomy. Now will I still have activity down there or is this something I need to look into more. I'm not sure I just don't want problems right away. When they removed my colon the surgeon said it was a endless misery and she took as much of the disease out that she was comfortable with.
Replies sorted oldest to newest
I still had discharge all the way to takedown. I always felt the urgency, so it was never a surprise. It was never a big deal for me because I did not experience pain.
I usually have no pain just lots of blood.
First time it happened to me, I was still in the hospital. It freaked me out that I still had the disease, but no colon. Nobody had warned me or the nurse on duty and she didn't know what it was all about either.
I've had my "temp illeo" for a long time now, still to do take down, and i get junk that passes. It's mostly clear, pinkish, yellowish, and every now and again bloody liquid.
No pain, but when I drink a lot I know it comes out more often. I tend to sit down to pee just in case.
No pain, but when I drink a lot I know it comes out more often. I tend to sit down to pee just in case.
I don't understand everything you are saying. Have they built your j-pouch out of your small intestines yet? In other words are you going to have a total of 3 or 2 surgeries?
No they have not made my j pouch yet. But it's gonna be happening very soon. Was getting new health insurance first cause my previous ins company cancels the policy end of dec. so new one takes effect jan 1st. I'm getting appointment set up with surgeon on Thursday this week to get scheduled for takedown. Hopefully will have surgery by end of January
I hope your appointment went well and your insurance woes are over!