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Hi,
I did a lot of experiments and does some ledgers and I wanted to share something to all. I am in Korea and the maid at my niece's cooks with very little oil. I had white rice and fish,meat,pastries like crème puffs, cakes my condition had improved a lot. It is the white rice that helps and little oil. Also, sitting in the bathroom for 20-25 minutes lessen my bathroom trips. Sometimes I only use the bathroom,2-3 /day.Recently, I do not take my lomotil on a regular basis like 2 x /day, and so with Beano. I tried for the first time grapes (not swallowing it) just sipping the juice and spinach, it does not give me problems.
Today,I had coconut milk mix with vegetables and meat,it did give me diarrhea (because it was my first time having it). I was in the bathroom 5x yesterday,I had some peanut butter and it helped but felt constipated a little bit. I guess I had too much! Everyday is a new day!!!
Other, than that I am a lot better than before!
I am feeling great but the key is sitting in the bathroom for at least 20-25 minutes really helped me a lot!
About anal itch, the anti fungal cream helps a lot.
I realized that when I had irritation that is when the itching comes. That is why do not push just wait patiently for 20 -25 minutes or more. I did that instead of making so much bathroom trips due to unfinished tasks!!!
It is my third month of reversal now.
Hope this will help even just for a little bit.
God bless you all.
One day one of us will discover the best health tips and management for jpouches , I believe that we will! Because we were the ones who had these pouches and we are at present are dealing with it.
maria
William- we have talked before regarding the tincture of morphine, paregoric, I also am taking it. It's been about a month in a half using the paregoric and it has helped significantly in reducing my BM's. I do not feel any side effects and it's not addicting like if you were taking morphine pills, which I also was on for over a year. I've also been taking Imodium with it, twice a day, orders from my GI. I've been struggling with incontinence and have severe breakdown of the skin in the anal canal, dealing with painful BM's every time. I, too, am thinking about going back to the bag for quality of life,but am going to give til end of year to see if any improvements. I am going on 7 months post takedown. As for butt burn I use desitin with 40% zinc oxide and wipe with Huggies natural care,no chemicals,wipes. As well as use a squirt bottle to help clean things out, getting a bidet soon Smiler I know when I'm feeling itchy or irritated it means I need to go and clean up because I probably passed gas and it had some stool in it. Or even when walking I can feel stuff just flowing down there which is soooo frustration when your in walmart and want to get your stuff and get out but can't because you have to go to the bathroom....grrrrr so annoying!
Krys777
Hi Kryss777,
I could understand the feeling of being in Walmart and I have to rush like if the line is a little long I feel like I just wanna leave and go home leave all my merchandise behind.
Try using the aquaphor first and then the anti fungal cream. It helps me a lot. Aquaphor heals any irritation of the linings of the anal and the cream helps relieve the itch. And also, aquaphor and calmoseptine ointment helps whe you have the burning butt due to so much bathroom trips or from pushing...
I always mix aquaphor with any ointment.
When I have loose stool, I eat banana or peanut butter if it becomes hard like bigger gaps in between,i immediately take at least 1/2 a glass of apple juice or milk and it balances out.
I am not yet perfect with my management with my jpouch but at least I had some ideas from my ledger! Everyday is always a new day sometimes it is better sometimes it is a little bit of a struggle.
Thinking of going back to the bag is a choice now, but I guess we will also have issues. It would be easier having it but for me I will give it a try having the j pouch. I had the bag for four years, I knew how it was like!
The same thing will happen it is costly ,you carry more stuff with you, the leakage is always an issue, the smell of it and for me it is unsanitary! I had more stories dealing with the bag.....
The worst was that I had kidney stones all the time. It is a nightmare having to deal with pain from kidney stones. I have to be on a wheel chair at the airport !
My Urologist advised me to have it reversed...

I am hoping that someday we will do it right dealing with the j pouch...
maria
I am 71 and had surgery 2nd stage iyr ago and 3rd 8mos ago. I was getting ready to give up with my 25 plus BM a day All the problems in the world I saw on here that tincture of opium was used by some I got morphine sulfate instead. Its cheap and Costco sells for $39 what will last 2mos. It works BM are about 10 a day but solid and no anal pain. I am in the gym and have a life. Do not give up
A

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