Moira, Welcome to the board!

Your butt is sore for 3 reasons.
1. More bile comes through, I think 30%, your poo than when you had your colon
2. You have not been using the exit for 2.5 years and
3. You are going more often and wiping more.

Please dab vs wipe. Use baby wipes and calmoseptine cream. Some use baby butt creams. I think you can buy this brand in Canada. Several sitz baths a day help.

After you get your "butt burn" under control if there is still bleeding or if you can't get the burning to stop please see your doctor. Cramping, a lot of trips a day and bleeding can all be signs of something wrong like cuffitis or pouchitis. Hopefully every thing will calm down soon. I probably was going 10 times a day at 2 months too. Also black pepper and spicy foods contribute to butt burn so eat some bland food for awhile, baked chicken, mashed potatoes, yogurt (I like Greek the best as has more protein and probiotics in it.

If you are using fiber and something like Imodium to make your stool firmer you might want to cut back on it so your stool is softer and that might help with the pain and discomfort when going.

You can also do searches on here if you want to look at past threads that discuss different issues. Click on the magnifying glass on the left hand side of the task bar while at a forum title page.

I hope you are feeling better soon

The best way to get the burning under control is to thicken up the stool coming out...

See how we can politely disagree

I was thinking maybe your stool was too firm which was affecting your cramping which is why I suggested loosening it up.

Catja is right too - and you do have burning as well.

Only you know how solid or loose it is - or it could be just right.

moira, you might also try ILEX... you can get it on amazon.com. Creams help a little for me but it is ILEX that really helps Butt Burn for me. It will put a thin dry layer on your skin that hardens slightly.... it will wash off but it protects your skin from the burn.....

It was more like ~6 months after takedown for me before I finally was able to manage all the burning and frequency..... I don't think you are reporting anything particularly abnormal??

And as marie noted, if you can get the frequency down a little and protect your skin, maybe that is your blood issue? (just the skin bleeding as a result of high traffic and wiping).....

This won't help prevent but for relief, Noxema Deep Cleansing Cold Cream (Blue Tub). Take a shower and keep a personal tub of noxema cold cream at hand. It will give you quite alot of relief from the burn.....

I feel for you . . . I have had the same problem lately. Nothing seems to bulk up my stool since I have had this crohn's problem. It is pure liquid and I am so sore. Immodium doesn't even help. Does anyone think I may need antibiotics or rowasa again, even though I was on them both for a month over a month ago. I am miserable. It wasn't like this before. Sally

Additionally, the toilet bowl is filled with bubbles after I go??? Gas?

Sally the ILEX works great for pure liquid stool.... to prevent the burn etc....

You spread it inside a little and around and let it dry... (it dries quickly)... the liquid stool then will pass right out and ILEX protects your skin....

digestive enzymes and probiotics for the gas??....

Thanks! Where do you get Ilex? Expensive? I am taking probiotics and will get more papaya enzymes as I ran out. Also, I get naused every time I eat. I don't feel very good. Any more thoughts? Sally

That illex will make your butt cheeks stick together so be aware of that. I would suggest Calmoseptine it soothes and protects and it meant to be put on your bottom. I had the same problem and I started a few things. 1.I started a probiotic...VSL3 see how many packs you will need. Some need 1 a day some need more. If you need more go for the VSL3DS because it is covered by insurance. I then started taking pepto to cut the acid. I use a bidet that helps. Eat a banana and a cut of apple sauce a day to thicken. It gets better. Try a few things and you will find an answer. Some people use Preperation H suppititories and find that help or put zinc oxide or A&D up in their rectum.

You might be dehydrated. Get more electorlytes in and that helps too.

Okay thanks. I have no appetite and get nauseated after I eat. Thanks for the heads up. Lobe y'Ll. Sally

You can order Ilex directly from the company that makes it. Ilex can stick the gluts together but a thin layer of Vaseline over the top will alleviate that.

I sometimes get those bubbles when I have diarrhea. I'm assuming it's bile-ish stuff.

kathy

as Kathy noted, while you're initially getting used to ILEX you can be extra cautious and put vaseline over top of it. Over time, (assuming it works for you) you will figure out how much of it you need to protect you and decide whether or not you even need any vaseline over top of it.

the image of your "butt cheeks sticking together" sounds scary...(??)... but I have been using it for over a year and have no horrible emergency room butt cheek separation stories to report.....

again, as kathy noted you can order it straight from them or just put ILEX in search box at amazon.com.......

good luck...

Calmoseptine seems to have cornered the market for this insofar as seems like doctors/hospitals/nurses etc... always recommend it first.... but for me, I find the menthol/vapor aspect to be a bit of an irritant...and bring about spasms, more BMS....etc.. Also, they indicate it's supposed to give you that dry protectant layer but it seems to retain a fair amount of "ointment" consistency for me (??)...... don't get me wrong I still use Calmoseptine sometimes ...I just find ILEX works much better. What I will also do sometimes is put ILEX on and then put Calmoseptine layer over top of the ILEX as a substitute for vaseline layer.

I am in the ER after nausea. I have a structure and they gave me a huge drink like apple juice and are waiting to do CT with dye. I think I will be It okay but vomited with aittle blood.No biggy. Thanks for advice. I drank more Gatorade and Searched for ilex.....tomorrow! Love y support system. Sally

I am in the ER after nausea. I have a structure and they gave me a huge drink like apple juice and are waiting to do CT with dye. I think I will be It okay but vomited with aittle blood.No biggy. Thanks for advice. I drank more Gatorade and Searched for ilex.....tomorrow! Love y support system. Sally

I'm so sorry you're in the Big H Sally. I hope it all sorts out very soon.

kathy

Thanks Kathy. It would be great if they would do something. I wish I knew how others get rid of anal strictures and quickly. My b is so sore. Thanks for your thoughts. It sure helps. Sally

Thanks you guys . . . Kathy, you always come up with something nice. Thank you.

Sally

Thank you for the kind words Sally! It means a lot to me.

kathy

FRH, thanks for the well thought out and precise description....so tirelessly written. Totally helpful!
Sally

Hi Everyone,
Thanks so much for all of your ideas and feedback. I've been trying various solutions and have little success thus far. Just saw my surgeon today and am waiting for an appointment for a scope to see what is going on. The pain has only been increasing and now also feels like possible cuffitis. Reminds me of the days when my UC was very bad. I feel raw and tender inside and am passing lots of blood. Hoping some solutions and answers will come soon.
Thanks again,
Moira

Hi Moira,

Which hospital are you associated with? I lived in Toronto for almost 10 years and know all the doctors there.

One thing that might help immensely is nefedine based solution cream. One of the causes that aggravates butt burn is spasms of the sphincter. Nefedepine based creams stops these spasms, thereby providing a chance for the area to heal. If you use it in conjunction with a barrier, it should be of great assistance.

Feel free to private message me if you like.

Solomin