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I have had my j pouch for 23 years now, but the last few years i notice that i dont feel much pressure or fullness in the pouch any more, but all across my abdomen. If i am not able to eliminate much, and relieve the abdomial pressure, i get nauseated. Any body else have ths problem? Any advice is appreciated. TIA
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I'm a long-termer too, but cannot say that your 'symptoms' sound/feel familiar. I still get very similar lower ab urges usually accompanied by wonderful, head-turning gurgling noises. Can pretty much fully evacuate at all times, except if I'm eating something that inherently slows me down / bulks up the food.

The only thought I had is, what kind of physical shape are you in vs where you were, say, 5 years ago? Have you lost core strength? I honestly don't know if that helps maintain your pouch's capabilities, but I still use my abs quite a bit to push everything out.

And, of course, get scoped regularly so that changes can be tracked.

Michael
I had some weird issues earlier this year, where I swear I wasn't getting the same feelings to go, but I ended up with a narrowing, and once that was cared for, things were back to my norm. I would get nauseated when I couldn't pass things normally. Do you think your outlet is narrower now? I need my gas, too, to help expel things. When things are too quiet in there, sometimes it's harder for me. Cipro makes things too slow for me, for example. Occasionally I've needed milk of magnesia to get things going again, too, to flow better. It's a non-stimulant laxative, and the only one I can use. But no, for the most part, things are mostly the same for me, 22years in, apart from that instance earlier this year.
No real differences in weight or shape over the last several years. My guess is pouch is getting overly large, and possibly the entrance to it narrowing some. Im trying to wait until next year for scoping as my problems are not serious at this point. I really think pouch removal is on the horizon, but i am just hoping i can put it off for a few more years.

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