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Hi all,
I've had my "temp" illo for quite some time now, really need to think about take down but..... I've been having this issue and I don't know what is going on.
I have also had a mucosectomy which makes me wonder if I'll be able to control what comes out of my butt?

(this has happened before and a course of antibiotics usually clears it up)

I'm not sure what happened first but I've been dealing with two separate tooth issues, the first was a cracked tooth that was obsessed and was hurting bad, I ended up having to remove it. So I was put on Cipro. Not long after that another tooth issue, had to have a root canal. Now, somewhere in this timeline of an infected tooth, my butt started acting up. What I mean is, normally I don't feel much of anything going on down there, and hardly anything comes out from day to day. However it's been acting up for a while now. I feel a little soreness in my butt and I get this discharge. The color varies from clear water like to light orange to a little red to bright red. Mostly light tan/orange. 

When this happens I can tell something is not right. I just don't know what it is?
I wear abd pads in my undies because I can't feel or stop the discharge from coming out. usually its just enough to be annoying. But at night I have more come out.
Now this is the timeline of antibiotics that I've been on. It seemed like I had best results with the amoxicillin. However I just got off round two of that and it hasn't gone away. And my doctor didn't think it was a good idea to stay on it.

Cipro 9/14/15
Z pk 10/7
Cipro 12/4
Z pk 12/12
VSL#3 12/19 - 2/25
Amoxicillin 12/30
Amoxicillin 4/1/16

Thoughts on this? how much is too much? how often is too often?
Does this sound like pouchitis?
Thanks for reading.

Alan

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hey, I had a pouch redo with mucousectomy back in October, and takedown 4 weeks ago. The whole time after my redo up until takedown, I had annoying mucous discharge several times a day. Sometimes I could feel it coming and sometimes I could not. It ranged from clear to yellow to brownish in color. I was so very worried I would be leaking stool after my takedown that I was obsessing about it. 4 weeks after takedown I have very little leakage. It is very minimal to be honest. I think I am starting to deal with pouchitis now though?? No urgency, but stomach is very crampy and I just don't feel that great. A lot of people are ill lately so not sure if its just that or beginnings of pouchitis?


That is a lot of broad spectrum antibiotic. Still, it does not sound like things are messed up. Maybe you are just getting some stool. Bypassing the stoma, hence the color change. If you really had a total mucosectomy, there should not be any cuff bleeding. If the oral infection is taken care of, you should not be on amoxacillin.

I suppose it is possible that you developed a C. difficile infection with all those antibiotics that all C. diff strains are resistant to. But, I would expect you to be more symptomatic. If you are concerned, perhaps it is time for a test to rule it out.

Another consideration is a possibility of diversion pouchitis. The cure for that is take-down of the ileostomy.

Jan

What is the test for c-diff and what are the symptoms? 
Little update- I was put and another course of amoxicillin that ended 4/1/16
Didn't help a whole lot. And now my butt is sore inside the cuff I'd say.
and I'm seeing bloody mess discharge when I sit on the toilet. I don't know what to make of it. It's been making me annoyed and uncomfortable for at least two months now. Side note-been dealing with high stress with a ill elderly mom. I know that plays into it for me too. Doesn't help that's for sure.

Ideas?

Thanks
Alan

I would suspect diversion pouchitis as well.  I had it and Shen got it to stop after a scope with one of his tricks. When I had my scope a few weeks ago with Shen, I asked him since I had a handsewn mucousectomy if I technically did not have a cuff any longer, and he kind of smiled and said I do have a cuff sort of... where the intestine is sewed into the sphincter the connection site can still be considered a cuff per say. interesting

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