Hello All -
I could really use your help as I navigate through some issues that I am having. I had my J-Pouch Surgery at CC in December. Recovery has been slow but trying to be kind to my body as reading others stories, it could take a year or more for things to "normalize".
Since surgery in December, a little bit of poop has been coming out of my vagina. I thought as things heal, so would this.
Last week, a little became quite a bit - I am needing a thick pad to make it through the day. I got a CT scan to confirm it was a fistula and they also did a scope and stated that my cuff is really inflamed which could have caused the fistula. Here is what I am trying for the cuffitis and fistula:
1. Canasa suppository
2. Cortifoam
3. Estrogen cream
If this doesn't work, they talked about getting my loop ileostomy back and doing a pouch advancement. From what I understand is that the cuff would be removed and the pouch would be advanced over the fistula.
Here are my questions:
1. Does the topical stuff really work?
2. Has anyone had these issues and did the pouch advancement - I am worried that removing the cuff would make me more incontinent.
3. What if I got the inflammation under control in the cuff and just had the fistula fixed?
Any advice and information would greatly be appreciated. I know I should be posting on here more than when I just have my own issues.
Tomorrow is a new day