Hello, I have been a member of this group and popped in off and on since 2009 under a different user name. I couldn't recall my old login info so I created a new profile....
I had colon cancer in 2009 and got my J-pouch in 2010 and for the most part I have been able to resume a relatively normal life although I do know where every potty is located everywhere I go! Lol! The one problem I have had has had more to do with severe cronic anemia. They can't figure out where I'm losing blood or why my iron store is depleted. I have had transfusions, iron therapy,... But nothing lasts and they are just treating a symptom to what obviously has to be a very real problem. I last had feramine (iron) therapy in Dec of 2012 and was checked in March of 2013 when my hemoglobin had gone up to an 11 so I was scheduled for more labs in June where they found my hemoglobin had dropped to 5 and my ferritin (I think that's what they called it - stored iron) was down to 3! So now I'm going through more tests!
My question is - does anyone else here have or has had these types of issues? Just thought I'd check - most doctors I go to aren't very familiar with J- Poucher and our unique problems.

Thanks in advance for your responses!
Mischelle