A Jeffrey update, things never get easier!

Hi Dianne,

FIrst off, I am so sorry...you are sitting under a star that does not want to shine for Jeff and it is so unfair...he deserves a break...poor kid.

How are you doing? How is your health? You are his primary caregiver and you need to keep up your strength if you want to be strong for him and your whole family (including your 4 legged guests!)

I hope that they find the blockage and can clear it up soon...he needs to get back on his feet.

How is his morale? How is he feeling other than his guts?

Many, many prayers and hugs from way over here.

Sharon

Dianne, so sorry that Jeffrey is having more setbacks. This seems more common than not around here, sadly. I am very glad that his liver is looking good though.

Fingers crossed that this is run-of-the-mill post op ileus, and not something more serious.  

I echo Sharon. Be sure to take care of yourself.

Jan

  Thanks,  Sharon and Jan.  Jan, you are correct, it is post-op ileus, more or less.  ..

yesterday, Saturday, they did determine there was a blockage, they just didn't know if it was a total blockage, or if there was a partial opening.  Today, Sunday, they did another test, contrast through his rectum, not pleasant and very painful he said, and found that the blockage was partial.  Some of the contrast went up into wherever.  So that was really good news today.  I am taking care of me, sort of.  I came home today . Eleven days in NYC is way too expensive!  I will go back tomorrow night.  I have a knitting event way downtown, so I'll stay at the hospital, maybe!  I might just come home.  NY subways are getting nutty again.  The crazies are taking over then asilium!  See what I feel like doing.  I know he is doing much better and sick of having me hovering over him!  So I guess this latest setback will just take time.  Like everything else, this too shall pass!

I wish you the best. 

That's alot to go through for anyone. 

My goodness. 

Richard. 

ouch. that doesn't sound like an ounce of fun. hopefully it gets better soon and he'll be on his way to a full recovery and a happy jpouch. your footnote says he was diagnosed at 6, but I cant seem to figure out how old he is now as he's getting his jpouch? good luck and yes, take care of you too.

Deweyj. Jeff is 25 now. Had his colon removed at 23 first takedown at 24, back to ostomy at 24 and turned 25 in August. He has been through a lot.  He also has Aspergers. So life has not been too easy for him.   Thank you for your kind words. And you also be well. 

Dianne

My heart goes out to you  Bad enough we as adults have to deal with this horrible disease.  I can't  even imagine having to deal with one of my children going thru this.   I wish you prayers and hope for the best for both of you.  Grace

Grace, thank you. 

Jeff is doing much better!  And he is coming home tomorrow! Birs been a long 2 weeks!

excellent news Dianne.

say as an aside, noting his gallbladder removal.

I think ive discovered something at least for myself, perhaps others already know this but as ive struggled a bit with ischemic pouchitis in the form of nightly incontinence, I have noticed that the former admonition against eating late might not be relevant. how do I mean, well immediately after takedown the surgeon's advice is to not eat past x hour, leaving plenty of hours for your food to find its way to the jpouch and exit before bedtime. logically makes enormous sense and I think it largely works, but if you are missing your gallbladder as I am, I think the calculus is altered. bile absorption becomes an issue and it seems like if I don't have anything in my intestines for the bile to work on, its going to find a way out regardless. so maybeeeee for example the suggestion that Scott posted about a tsp of Peanut Butter before bedtime seemed to work for me and I think its the absence of gallbladder issue and flying bile. nothing scientific about my observation but I thought I would throw it out there.

I have never been tested for bile absorption but I hear that one can be without too much ado.