Wow, sorry you guys are having to deal with this, and feel like there are no useful solutions. Hopefully, someone with some more specific experience will come along. It seems that your wife’s colonic disease also affects the upper GI system. I presume you have sought out experts in motility disorders in Washington. I have heard of people traveling to the Mayo Clinic or Cleveland Clinic for comprehensive work ups in these complicated cases, but there is not always lasting results.

One question I have is regarding her fissures. Are they anal fissures, or in the bowel walls? Anal fissures can be excruciatingly painful, and usually topical treatments are best, such as topical lidocaine and/or nitroglycerine. If she has anal fissures and can get those properly treated, it might make all the rest tolerable.

Jan

If anal fissures I use a compound cream called Diltiazem 2% ointment.  Very helpful to me.  Best of Luck you have a lot to think about and I pray u find the right Dr and treatments.

Dr. Diane Bai in Tacoma has been amazing for me. After my old doctor retired, I tried a few different GI docs and neither of them had the gift - kind of an inate understanding of what I needed. At the time, I was having a lot of GI issues. She has been a godsend for me.