I'm wondering if it is recommended to be able to take NSAIDS after my temp ileostomy is created to let the bad jpouch heal for 6 months before revision etc. I ask because most "normal" people can switch to NSAIDS after surgery to get off the opioids. And the pain medicine protocols and laws account for them, not us. Anybody have experience with this? Preparing for Oct 24 surgery right now. Also, anyone have any idea how much I will want a family member at the hospital? For support, company, help? It's been years and I don't remember, and I'd like to give her an idea ahead of time. Thanks all!
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I am so happy your surgery is coming up soon!!! Its much sooner than I expected!!!
To answer your question: good question! When I was in the hospital with my temp, the doctors gave me NSAIDS but just because it was good for me does not mean it will be good for you. Some people with colons cannot even tolerate NSAIDS. If you decide to try NSAIDS, I would suggest taking it on a full stomach with food in there, never take NSAIDS on a empty stomach- food helps coat the stomach from getting a ulcer/bleeding.
Thank you for your personal experience. I’m so glad it worked for you. I recently took a chance and took an Advil when my neck was in severe pain. My Gastro system was messed up for days. Not full on pouchitis, but definitely straight liquid stools, and a severe case of Butt burn. The reason some of us can’t take that kind of medicine is it creates a Cox 2 inflammatory response in people who have ulcerative colitis. And it inflames our Jpouches. Considering the Jpouch will still be in the body and have a blood supply that is being infused with NSAID. I wonder if a pouchitis situation could happen and then I’ll be having all kinds of weird stuff coming out of my bottom. Anybody else? Any chance that Jan is reading this?
Regardless of what others have experienced, if you had a severe reaction to a single Advil, and you’re pretty confident that it really was from the Advil, then it’s inadvisable to take it, even with a disconnected pouch.
@tulsamom posted:Thank you for your personal experience. I’m so glad it worked for you. I recently took a chance and took an Advil when my neck was in severe pain. My Gastro system was messed up for days. Not full on pouchitis, but definitely straight liquid stools, and a severe case of Butt burn. The reason some of us can’t take that kind of medicine is it creates a Cox 2 inflammatory response in people who have ulcerative colitis. And it inflames our Jpouches. Considering the Jpouch will still be in the body and have a blood supply that is being infused with NSAID. I wonder if a pouchitis situation could happen and then I’ll be having all kinds of weird stuff coming out of my bottom. Anybody else? Any chance that Jan is reading this?
Dang!!! I never knew the link behind NSAID and UC, that is pretty scary!! Thank-you for sharing that, finally know the reason!! I have been taking NSAID for my period pains with my j-pouch for 10 years almost, I hope that does not happen to me hopefully. I use to get bleeding with NSAIDS but ever since I ate it with a meal, never happened again.
Please let me know how your surgery goes!!! I am excited!!! I hope you finally get well love 
NSAIDS gave me pouch ulcers. I wasn't supposed to ever have NSAIDS again, but when I had hernia surgery I was given Toradol, an I.V. NSAID, and got bleeding duodenal ulcers after 4 days of this I.V. drug. Am extremely sensitive to all NSAIDS. In my chart it's highlighted in bright yellow that I can't ever have these.
@roseviolet posted:NSAIDS gave me pouch ulcers. I wasn't supposed to ever have NSAIDS again, but when I had hernia surgery I was given Toradol, an I.V. NSAID, and got bleeding duodenal ulcers after 4 days of this I.V. drug. Am extremely sensitive to all NSAIDS. In my chart it's highlighted in bright yellow that I can't ever have these.
What do you use for period pains and headaches??? NSAIDS is the only thing that works for me literally lol
@Roseviolet I didn’t realize they could give nsaids by IV. I never heard of Toradol. I’ll make sure that is marked on my allergies. I’ve never included those, but that’s important.
This piece is from aa Google search:
How strong a painkiller is Toradol?
Toradol is a very strong NSAID that should only be considered for the short-term relief of acute, moderately severe pain that occurs following surgery. Toradol carries a high risk of severe gastrointestinal side effects and can increase bleeding. Treatment with Toradol should not exceed five days. Nov 20, 2023
Lauren, I use extra strength Tylenol for aches and Sumatriptan for headaches.
I had been able to use high dose NSAIDs for years for my enteropathic arthritis, but over time I developed non-alcoholic fatty liver disease and early kidney disease. Never a gut problem with it. Now I only take NSAIDs for short periods with acute flares. An occasional Tylenol maybe. I have also had IV Toradol post operatively. It worked great.
This is a very case dependent issue. Bottom line, if you have shown a high sensitivity to NSAIDs, that will persist even with a decommissioned j-pouch.
Jan
Thank you Jan. It makes sense.
Thank you for offering your input, Jan, which lets everyone know that some tolerate NSAIDS well and others don't.
I had stomach ulcers due to nsaids. I sometimes use arthritis strength acetaminophen (Tylenol). It works most of the time. One tablet is 650 mg, as opposed to "extra strength" which is 500mg. It can cause liver damage if you take too much. My doc told me that for chronic pain you can take up to 2000mg a day. For an acute pain, 4000. I hope this helps.
Thank you for that information. I wasn't aware about the dosages of Tylenol.
Tylenol is very safe in the usual doses (e.g. extra strength). The higher doses can be risky if you drink alcohol or have liver disease (whether you know it or not).
Thank you Scott. I really don’t drink and have never had liver numbers abnormal. Still, I will use only what is necessary only for as long as it is.