I think that is a good answer to give. You dont like it?

you can always see dr. Bo shen in new york

It’s a non answer. My motility specialist did a rectal exam. Turns out I have a stricture, the other  doctor did nothing. I had been in pain a long time.

@Alaine posted:

It’s a non answer. My motility specialist did a rectal exam. Turns out I have a stricture, the other  doctor did nothing. I had been in pain a long time.

Oh i did not know that. That is messed up. I thought he gave that answer and did work behind it, but since he did not do anything, your right for sure

@Alaine posted:

I’ve had a JPouch for thirty -six years. I need a good gastroenterologist in the South Orange New Jersey, area. I’m no longer happy with the doctor I’ve had for over thirty years. If I have a problem, his answer is, you know your body better than anyone.

Hi Alaine,

I searched JPouch gastro doctors in my area.
A regular Gastro doctor cannot seem to handle all the complications that arise with JPouch. Hope you find one in your area or close by.

You’re not far from Manhattan, there’s plenty of JPouch doctors in the city, mine is at the NYU IBD clinic. There’s also MT Sinai.

Alaine, if you can handle the train ride to the city and a walk/cab ride from there (or are braver than me and drive into the City), NYU IBD clinic has been great for me. Dr. Chang is who took care of me for GI issues, but there are at least two, maybe three good IBD programs in the City (friend got good care at Columbia, and others have mentioned Sinai). I doubt anyone has the volume outside of such large centers to rival their experience.

And it’s kind of a balance, right? I appreciate the ‘you know your body better than anyone’, because it’s true in some ways, but it does not help when that means they don’t do anything for you, and don’t even try to help you figure it out! (Been there, more than once, with other docs. Ugh.) Dr. Chang wasn’t like that. She listened, and then had thoughtful suggestions and ideas. And they have a full complement of expertise for diagnostic testing when needed. I only stopped seeing her because I moved away from the northeast; otherwise, it was worth the travel time compared to my local options, even in a decent-sized city. And she very kindly recommended someone where I was moving whom she knew from the IBD world, and he’s been great as well.  

As an aside, I had the great Dr. Remzi once tell his residents to listen to me, during my hospitalization, because ‘she knows her body better than anyone’—but that was only after he himself didn’t listen to me about anything for the first few encounters, and everything I told him turned out to be correct. Listening isn’t part of the skill set for his generation of doctors, I know (and even later ones at times, sadly…) But that’s why I appreciated it greatly, when he finally got there with me! (:

Thanks I’ll check them out

@Alaine posted:

Thanks I’ll check them out

Dr Shannon Chang at NYU is my doctor also. She’s excellent