Has anyone ever gotten pouchitis from iron infusions? I’ve gotten it within 1-2 weeks of infusion the last two times I had to have infusion. Never had it before in my life besides these two times so I don’t think it’s coincidence. And this time it’s killing me! I’m on antibiotics now hoping it improves but I’m wondering what am I to do? I take iron every day and eat iron rich foods but I still seem to need infusions 2-3 times a year. Anyone had this? Or if not anyone have any idea if maybe a different type of iron would help for next time? I’m miserable 
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Did you suffer with constipation after the infusion??? Or did your bowel habits change??? I ask this because holding on to poop longer can lead to problems and iron is known to cause constipation in some.
No not at all. I was going normally and felt mostly normal except some nausea in the week or so after the infusion. Then I started slowly with some cramping and urgency. Then things started in full swing, cramping, spasms, urgency, frequency, liquid stool. It’s the exact same thing that happened last time, only this time there is more pain. I’m on day 3 now of antibiotics so hopefully I get some relief soon. Thank you for your reply.
@Cb2009 posted:No not at all. I was going normally and felt mostly normal except some nausea in the week or so after the infusion. Then I started slowly with some cramping and urgency. Then things started in full swing, cramping, spasms, urgency, frequency, liquid stool. It’s the exact same thing that happened last time, only this time there is more pain. I’m on day 3 now of antibiotics so hopefully I get some relief soon. Thank you for your reply.
Wow, sorry that happened, I am not sure how you got pouchitis then- I am at la loss for words then. I am glad you are on antibiotics but very worried for the future if you keep getting pouchitis from IV iron.
How soon did the symptoms start after the IV???
@Former Member posted:Did you suffer with constipation after the infusion??? Or did your bowel habits change??? I ask this because holding on to poop longer can lead to problems and iron is known to cause constipation in some.
Lauren, please stop repeating this nonsense as though it were established fact. There isn’t a shred of evidence that delaying bathroom trips has any connection to pouchitis.
@Scott F posted:Lauren, please stop repeating this nonsense as though it were established fact. There isn’t a shred of evidence that delaying bathroom trips has any connection to pouchitis.
Scott F: I do no think you are a nice person and that is why I do not respond to you but since in the past you kept posting on on what ever I post, I am going to put an end to it by posting info here, after this I am not going to respond to you anymore because I was tired of your rudeness in the past and I am tired of it now.
https://www.carygastro.com/blo...0bowel%20syndrome%20(IBS)
https://www.medicalnewstoday.c...of%20frequent%20UTIs
First website: talks about how holding poop in a colon cause infections
Second website talks about how holding in pee cause infections.
Hypothesis: if its bad to holds stuff in a colon and if its bad to hold stuff in a bladder, I do not see how a J-pouch would be any different than those two things. I am almost 10 years out and I do not hold my poop in and I have never had pouchitis. I saw posts how you hold your poop in and you have chronic pouchitis. And I have talked to other people on here that poop as much if not more than how much I poop and they never had pouchitis either.
After this, I have no interest in corresponding to your rudeness. You cannot control what I post. I have shared my thoughts with other people on here and they agree too. You can disagree but doing it rudely is unacceptable, that is why will not respond anymore to your rudeness.
There are certainly consequences to pathologically holding in poop or pee. Allowing a J-pouch to fill to its normal capacity is nothing like that.