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I have a jpouch and had the ileostomy reversal 9-13-2024 because of ulcerative colitis. I am having a lot of pain and pressure when I go (all liquid), have the feeling of tenesmus, and it’s even difficult to fart or pee because of the pressure. This happened to me before the surgeries too, but I thought this would be gone without the diseased rectum.

In addition to this, I have leftover skin on my butthole from hemorrhoids that my surgeon refused to let me remove pre-reversal. So now it’s all cut up and burns because of the constant BMs (~10 a day).

Also, still on liquid diet because my surgeon insisted on two weeks, so nothing is formed.

I already use barrier cream like crazy (calmoseptine), use a bidet, and constantly am soaking in warm water because the pain is so horrible.

Any help at all would be appreciated. 🥲

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Hi - firstly - you are going through some bad stuff right now - but I promise you will get better. This is such a colossal surgery. It takes a lot of time - you are only 10 days out. You will feel better in a week or so. If you are moving your bowels - which you are - it means at least things are moving along - trust me - that is a blessing. Sometimes the bowel does not wake up for a week. As far as the butt pain - honestly that will get better. The skin gets less sensitive over time. Maybe speak to the surgeon about this “two week liquid diet”, no bread or eggs or pasta? I have not heard of that before, but you should certainly listen to him/her. Just take it day by day. These recoveries are hellish, just so bad. Maybe a bowel relaxer (anti spasmodic could help - levsin or something like that). Let us know how you are doing. Fiber will help when you are allowed.

DK

I was told not to eat solids because where they connected the intestines back together is constricted (small opening). I’ve been taking fibercon and Imodium though hoping to bulk up/slow down the BMs.

The surgeon’s office said this was all normal and prescribed some lidocaine. I really hope this is temporary because I miss my ileostomy right now. I had no pain with that!

I can live with the burning, well I can treat that at least. It’s the soreness from pressure and hemorrhoid-like pain.

Lyssicole

Hey lyssicole I had the same diet right after reversal.  It takes time for your system to adjust. I went 2 weeks on liquids then 2 two weeks on solid liquids before I could have real food.  Has your Dr told you to take imodium to help slow things down?  That will help alot right now.  Things will get better, your doing what you can for the burn just give it time.

S

Thank you everyone for your help. My colorectal surgeon took a look down there and discovered multiple fissures (and hemorrhoids). I am now waiting for a procedure to help them heal, cauterization and Botox for the muscle. No wonder I had pain other than the burning and itching!

Not sure how this happened as I don’t strain a ton. Must be just from the trauma in general and excessive BMs.

Lyssicole

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