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Hello -

I had my J Pouch in 1989 and been doing really well. 4 weeks ago I started with horrendous pain and vomiting.
Was taken by ambulance to the hospital and after a CT showed double blockage in my small bowel needing emergency operation asap as the tissue in my bowel was dying.

OPERATIVE FINDINGS -

Multiple interloop adhesion through out the small bowel mixture of grade 2 and 3 interloop adhesion(Zuhlke grading system),10 cm of dilated loop of the smal bowel proximal to the J pouch, that has caused closed loop obstruction.no bowel ischemia,enlarge liver,safe and careful dissection with combination of sharp and blunt dissection and adhesionlysis.no stricture/obstruction in the pouch, patent ileoanal anastomosis.

Been home 2 weeks and the pain from my wound is really bad - eating soft diet but really concerned of another obstruction and needing a permanent ileostomy.

I am interested if anyone else with a j pouch has experienced similar.

Thank you for taking the time to read this.

Take good care,

Linzalisha 💕💕💕

Tags: emergency, Obstruction, laparotomy

Replies sorted oldest to newest

I have not had total blockage yet, but my GI says that it may just be a matter of time. Scar tissue has narrowed the opening to my J pouch and the closed end to less than the width of a pinky finger. As of yet, it hasn't been a major problem since the day of my colectomy and J pouch (2004) my stool has never been formed and my doctor says that for now, as long as it isn't blocked, it is ok.

Q

Hi Lauren,

Don’t know what caused it. I have felt unwell generally for a few weeks and Drs kept saying I had respiratory infection but maybe this was brewing. Who knows!
Terrified of it happening again.
Trying to manage wound pain and my insides healing is bad.

I really hope you are keeping well Lauren.

Thank you for replying too.

Take good care,



Love Linzalisha xxxx💕💕💕

Linzalisha
@Linzalisha posted:

Hi Lauren,

Don’t know what caused it. I have felt unwell generally for a few weeks and Drs kept saying I had respiratory infection but maybe this was brewing. Who knows!
Terrified of it happening again.
Trying to manage wound pain and my insides healing is bad.

I really hope you are keeping well Lauren.

Thank you for replying too.

Take good care,



Love Linzalisha xxxx💕💕💕

Omg! I am sorry hon!! You do not deserve this at all, I am sorry this is happening.

I am doing fine, do not worry about me, I am worried about you!!!

Are you taking any antibiotics??? How are you feeling today???

FM
@quizkid99 posted:

Thank you for your kind words. My GI says that it is Crohn's of the J pouch. Apparently there are small ulcers always in the J pouch and scar tissue forms over them. When I had my total colectomy I had no idea that ulcerative colitis could become Crohn's of the J pouch.

Bless you all.

Yeah, I hear that often about Crohns attacking the pouch. I those people including you had Crohns the entire time and its just reaching the surface now unforuntately.

Are you going to keep your pouch???

FM

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