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Like most J Pouchers, my sodium is chronically low due to the frequent BMs (usually 131-132 whereas normal range is 135-145).  My blood pressure med (losartan, 50 mg) has succeeded in driving down the BP, but not enough, so a beta blocker was added to the regimen: Carvedilol, 12.5 mgs daily.  It seems to be working, but at the cost of driving down my typically low sodium even lower: yesterday's blood test came back with sodium at 128.  Chloride was also low (95- normal range is 98-110). Potassium was on the high side of normal range (5.0, normal range is 3.5-5.3).

As I posted elsewhere, because I have an enlarged aorta, keeping the BP under control is a HUGE long term health concern.

Apart from going on salt pills or the other obvious strategy of increasing electrolyte beverages high in sodium and chloride, I am considering other strategies but would like some feedback from all of you, especially some of the medical professionals in this group:

Tomorrow''s pizza will be ordered with Pepperoni and Xtra cheese

No more low sodium soy sauce with the sushi- regular only, and copious amounts along with lots of fish

I bought some of those very salty seaweed snacks

Considering buying V8 juice, which I think is 1000 mg sodium a can.

Considering regular Sodium parties: pepperoni pizza, potato chips, V8 juice

Any other ideas?

I guess it would be worse if I had high sodium, but I feel like I should be able to control this and jack up the numbers.  What do you guys think? Related question: at what point does it become "dangerously low"? 125? 120? Lower?  Do I have a cushion here?

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I also needed to watch my sodium levels for many years now.

Values from 130 to 134 are considered a minor deficiency. Below 130 and above 120 is a medium one, and even lower a significant danger.

I was sometimes hospitalized when I had had increased diarrhea for some days (because of some kind of bacterial or viral infection, in addition to my chronic pouchitis / ileitis). My weight was then down some kg and I was lacking sodium as well as other minerals. Sodium was typically only little above 120 back then. And I was dealing with circulatory issues and exhaustion. Surprisingly there was no appetite for salt, in fact little appetite at all in that situations.

I keep my sodium levels up at a normal level or slightly below by adding salt during a meal. I would not like to make my whole meal too salty. So I made myself a little measuring spoon that holds about 0.5 g of salt. After having had at least half of my meal I add a spoonful of salt to already chewed food in the mouth before swallowing it (so I don't get to taste the salt).

Too much at once or taking it on an empty stomach would make me feel nauseous. At the moment I need to add about 1.5 g of salt a day that way to keep my sodium levels up. But that depends on one's eating habits. I'm not using salt sparsely for cooking, but I also don't overdo it.

Your sodium level of 128 may already affect your well-being a little. I would recommend that you improve it whatever way. Those salty foods you mentioned will probably also work.

SteveG

Steve,

Thank you for the highly informative post. I was concerned with the 128 as I usually hover in the low 130s and it's clear it's getting too far the other way from normal range. Your tip on adding salt to each meal in the fashion you do is an excellent one. I should note I am not shy about adding salt and eating salty foods, but clearly what I am doing is not enough.

CTBarrister

SteveG,

I just tried a variation of your sodium supplementation protocol.  I spooned 0.5g kosher salt into 1.5 ounces water, stirring salt crystals vigorously until dissolved.  After eating my dinner, I rapid chugged this "sodium power shot."  Dinner was a pork chop which I brined in salt water for 2 hours before cooking.  There was no lack in my sodium consumption today.  Tomorrow meeting friends at a pizza place and ordering a pepperoni and sausage extra cheese pie as part of a sodium party that will also include salted nuts.

I guess the one consolation is if we were on the other side of the normal range of sodium, the diet would be getting boring very fast.  I feel sorry for the typical high sodium hypertension patients because it's easier to add than take it out of our diets.

CTBarrister
Last edited by CTBarrister

CTBarrister, I'd be happy if I wouldn't need to add salt, as my kidney labs are a little worrying (although I drink enough).

Last year, when I was still on chronic antibiotics, an amount of 0.5 g additional salt a day was enough. My inflammation is still well under control with the current treatment (Skyrizi), but I need a little more salt.

Remember to have your blood levels checked after a few weeks so you can adjust your salt intake.

SteveG

Just an update: my cardiologist, alarmed that my sodium level has gone below 130, has ordered me to stop taking losartan and has doubled my dosage of carvedilol from 12.5 mg to 25 mg. I guess he felt the losartan at 50 mg was a bigger culprit in suppressing the sodium then carvedilol, the beta blocker.

I was also ordered to keep taking my blood pressures and get another blood test end of June.

Hoping to get sodium level up and over 135 by end of June. In the interim, I am keeping my sodium consumption on the high side until the next blood test.

CTBarrister
Last edited by CTBarrister

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