You don’t say how many good years you got from the 2011 surgery, but that’s important. You also don’t say how bad things are now, but a pouch that big can’t be functioning properly. You can ask the surgeon if there’s any reason to expect a better result this time. You could also ask if you’re at risk of short bowel syndrome if you have another pouch constructed. It might not be his fault, but his prognosis was incorrect in 2011. Your decision might be whether a similar result is worth the surgery, vs. (perhaps) an end ileostomy, factoring in any risk of a worse outcome, since more small bowel will be sacrificed.

Good luck!

The pouch is growing, like making new cells?  Or is it just hugely swollen like mega-pouch? 

Scott- I probably got nine good years before the size of it made symptoms become obvious. Thank you for the advice about the small bowel question. I don’t think it will use much, but I don’t know.

Sara-  I think it’s like when they expand your skin to put an implant in. This thing grew a little bit at a time. The original j-pouch is still down in the pelvis, but the top of it has grown up to about the size of a two or three-year-old’s arm. And then at the top of that it attaches to the small intestine.

HOW did your surgery go???

The surgery is actually in July. I was asking questions for my last meeting with the doctor before the surgery.

@tulsamom posted:

The surgery is actually in July. I was asking questions for my last meeting with the doctor before the surgery.

Okay please let us know how it goes! I will pray it goes well

Thank you so much!!