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J-Pouch ForumsHelp! Need advice now!
a temp loop ileostomy surgery looming at same time of gastrectomy. fap patient with low and high grade dyspasia stomach polyps at the tip and high grade dyplastic tubular villous polyps with high grade dysplasia at the tip. surgery will happen/on horizon.
Len786 replies
Len78

hey folks,

i could use some insight and support.  our gastrectiomy folks with full stomach removal and duodenom spared are virtually non existant on the board.

i am unique. here i am at 46 now requiring more intestinal surgery because i did not have a mucosectomy/hand sewn jpouch installed 22 years ago but had it double stapled in an effort to have a one stage (single) jpouch operation when i was only 23 years young.

what can i expect drain wise in the rectum after a mucosectomy/advancement but a surgical oncoligist?  the said surgical oncoligist trained with my surgeon who operated 22 years ago in october of 2001 on me and took my colon and created the jpouch leaving the 2-3 cm cuff.



i will have that 2-3 cm cuff removed hopefully waking up with only a temporary ileoostomy



has any member here underwent a full stomach removal sparing duodenom? how will i recover with gastric surgery and having pouch advancement/mucosectomy?  he is trained in the da vinci lapropro/robotically asiisted gastrectomy and i may have the mucosectomy opened up fully or transanally?



is there a such thing as doing amucosectomy thru the rectum but i will be on my back for the gastrectomy operation?

the oncoligist trained under dr rolando rolandelli who is now in north jersey and my surgical oncoligist is in philly at a cancer hospital

what can i epect drain wise, picc line/central line? waking with ive nutrition? a peg tube in my stomach?   how do i deal with all this and wil have a temporary stoma

any support and answers appreciated. i meet and ask question with the surgeon on march 28th. im scared. he knows i dont want to lose my jpouch but i have faith in him becaus ei never had complications in the 22 years with the 1 stage jpouch that was double stapled.

i will have lots of questions for him im formulating on paper and he expressed he'll answer all my questions and concerns at consultation on march 28th.



gosh when it rains it certainly pours.

thanks if youve read this far



len

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Len78Len78Member

hi scott

yes i have low grade and high grade tubular villous adenomas that came back on most recent pouchoscopy and the stomach biopsied polyps were low and high grade dysplastic at the tip of those polyps sampled/removed. the pouch has low and high grade polyps at the tip of them of those tubular adenomas.

i never had an ileoostomy, i was one stage from 2001 october with a stapled anastomosis.

he said, the surgical oncoligist we will plan for a temporary diverting loop and no plan for a permanant one.    i need the gastrectomy and he said he might be able to do the davinci robotic assist taking my stomach and mucosectomy/advancement in one day

its alot to undertake in one day, long duration of anesthesia. my cardiologist will have me do a stress test and echo of the heart march 27th,

i do not have a surgical date as im meeting for consult on march 28th

i wish i had the hand sewn mucosectomy approach/method 22 years ago . i was always on top of my surviellence. with fap, its the disease progression. i inherited this crap from my dad. he lived to be 79 and his death was not fap related but he had his stomach . im 46 and i have to have mine removed, my stomach, maybe sparing the doudenom

hope to hear back from you

len

Len78
A AMBMember

So sorry you have to face all of this.  It sounds as though you're in good hands with the surgeon.  The surgical approach back when you had the procedure may have been chosen for better function,  because having the mucosectomy can mean more leaking.  

If you've not yet used the site's search function, search "advancement" - there are quite a few posts from people who've had mucosectomy and advancement procedures.    Same for "gastrectomy."  Maybe you'll identify members who will share their experiences.

A

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