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Has anyone in here developed endometrial cancer in your 40s after all the colon and pouch stuff was resolved?

Im currently being evaluated for suspected uterine cancer. Biopsy is Tuesday. Im only 43, which is outside the typical age range and im also not obese. But all the drugs i had to take during my long battle with ulcerative colitis like steroids maybe could have destroyed my bodys progesterone production which lead to a rise in unopposed estrogen over 20 years and unopposed estrogen was listed in the literature as a risk factor for endometrial cancer.

I also wonder if all the CT scans we are exposed to in our IBD to pouch life increases risk too?

The treatmemt, if it is found, is radical hysterectomy plus chemo and radiation. How will those things impact my j pouch? Will it harm the pouch and cause me to need a permanemt ileostomy? My friend who died of cancer in 2017 had bowel rupture from chemo and had to have a bag.

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I was diagnosed with UC when I was 41, had s-pouch surgery at 43. Diagnosed with ovarian cancer at 55. I am now 66 y.o. I had surgery and chemo. It was caught early. My family on both sides has history of UC ( mom and paternal cousin) and breast cancer on both sides, so don’t know if all the steroids I took for UC were a factor. My UC was diagnosed before all the new biologicals were available. I had 4 rounds of chemo, I was a little more constipated than I was used to. Side effects were tiredness, low energy, no appetite, some nausea, but I continued to work my part time job as a hospital pharmacist and anti-nausea meds helped. Lost my hair, but wigs are great!

V

Losing your hair depends on the chemo drug. Some may thin your hair without losing it.  I thought losing my hair would be the worst, but it wasn’t as bad as I thought. I was referred to a beautician, that was also a cancer survivor. She fixed me up with a wig that was similar to my own hair/style and trimmed it to fit my style.  Around home, I just wore a baseball cap.

V

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