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Hi Folks, I thought I would post this note to see if others go through the same kind of thing I do from time to time.  Perhaps there's a way to pinpoint the cause, or perhaps it's simply part and parcel of having a j-pouch.

I had my one-step total colectomy in July of 2000, so it's been 23.5 years now.  I'm 55, and I consider myself to be in good shape for my age.  I coach hockey for a living and I officiate it on the side.  I was returning home from officiating some late-night games last night.  I got home around 12:30am and was really hungry.  I know that eating too much at that hour right before going to bed isn't usually in my best interests!  I don't usually sleep as well, nor do I feel as well if I do.  Of course, if I sleep really deeply when I have a lot of food in my stomach, I can expect incontinence sometimes.  So last night I decided to cut up and skin a couple of very ripe pears and I ate them along with a home-made cookie.  I drank some soy milk and went to bed.  I don't want to disgust anyone here but I must have woken up at least 6 times during the night to go to the toilet to have mushy bowel movements and lots of urination.  In the morning I was still doing the same thing.  Waking up and back to sleep etc etc etc.  Eventually, it seems like just about everything in my digestive system got cleaned out.  I felt really empty and didn't want to get out of bed as I didn't sleep much / well and was really tired / sleepy still. 

This doesn't happen that often, but every now and again it seems my body just keeps pushing out the mushy stool several times, and lots of it, until I am empty.  My weight for many years was between 160 and 165.  During the pandemic is was down to 145-150.  Currently I am around 147.  It seems that even if I wanted to gain some weight, I can't.  My body just keeps shitting out everything I eat!  It's a physical issue but I find also a mental one.  Generally speaking, the more I eat, the more I have to defecate.  Occasionally when I make more trips to the toilet than usual, I realize that I missed my dose of codeine at the usual time.  This would definitely contribute to increased bowel movements and cleaning out the body.  However, I am pretty sure I didn't miss my dose last night around 6pm.  [I take 300mg of codeine daily broken into 2 doses].

Do some of you go through the same type of thing like I have described here?  Do any of you feel like gaining weight and keeping it on is impossible?  That said, I am not too worried about my actual weight being where it is.  I am more concerned with my decreased muscle mass and perhaps not having the food energy and physical energy to increase it again.  I think it is fair to say that a reduction or lack of caloric energy = a lack or reduction of physical energy. 

I am looking forward to your responses.

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You seemed to suggest that “mushy stool” is a problem. Are you intentionally (or unintentionally) having formed stools? In general J-pouchers are much better off with mushy stools. This leads me to wonder if you’re getting yourself seriously backed up with those formed stools, maybe from a bit too much codeine, and then periodically having the floodgates open, perhaps inspired by a couple of pears or a missed codeine dose. I don’t know that this is happening, but it sounds like a possibility.

Scott F
Last edited by Scott F

Quote.

Generally speaking, the more I eat, the more I have to defecate.





I picked that out of your post because I must mention one thing.

I had a pouch but now have an end ileo.

As soon as I eat something it's pushing whatever is in there out.

I do mean as soon as I eat.  You don't have a colon either. It may work the same with the pouch.

As soon as you eat. It pushes whatever you are last out. Immediately.

Just a thought.

And Scott is right.

Your codeine is slowing you down. That's a large dose in my opinion. But. I don't know for sure.

Narcotics definitely slow your system down. And missing a dose. Your system will take advantage of it and move things through.

Richard.

Mysticobra

I experience similar situations from time to time.  I need Imodium 3x/daily to slow things and avoid acid/caustic bile that feels like fire.

I do need to be careful in the sense that every now and then, I produce “non mushy”  stools that are very unpleasant to try and eliminate. When that happens I need to skip a dose so I do not back up even more.

When I first started this journey I thought nice firm stools were a good goal.  WRONG.

I look forward to looser stools and even don’t mind a an occasional liquid BM to cleanse things out.

i lost 35 lbs post colectomy and had gained back 20. After my bout with Covid last spring I lost 5 of those lbs and have really struggled to gain them back.

N
Last edited by New577

Scott, sorry for the slight misunderstanding.  Mushy is typically good for me.  Watery seems the worst and most unpleasant.  I don't typically get much harder output than mushrooms, although sometime when my fluid levels are down, it can get firmer.  Last night I officiated another game and got home very late.  I chose a couple of pizza pops because I needed something solid that wouldn't run through me like the night before.  I ended up waking up early, eventually going back to sleep for 3-4 hours, and when I finally got up for good my output was about as solid as can be for a j-pouch.  Like those mini-weiners coming out in large quantity.

I've been doing this for over 23 years a d it doesn't seem to get any easier!

C

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