What kind of dietary modifications are you making?  Are you taking any medications?  The group is better at responding when information is detailed.

Thank you Sara Marie; I don’t take any medication. I drink Priemier Protein; Probiotic; Vitamin D.  I am still low fiber diet. I try to eat 4-5 small meal a day.

That's good to know!  Can you describe how your bowels are working (or not working) now that you have the j-pouch?  That might also help people brainstorm with you about what might be going on. 

April 2023 I was 135 lbs before my 1st surgery ( removed total colon and rectal because I had Ulcerative colitis and stricture), I had ileostomy bag for 3 months.

July 2023 I was 121 lbs before 2 nd surgery; take down ileostomy .After 4 days I had urgent surgery because infection. I stayed in the hospital 3 weeks, went home 111lbs …. And continue loosing weight and hair,….. 103 lbs now.

   My bathroom trip 4-6 times a day…. Sometimes I had diarrhea …..

My English is not well; thank you so much for understand my problem. Please give me advice. I appreciate. Total I loose 32 lbs since this April, I afraid.

This is good information.  I bet someone will have ideas for you.  I don't remember my first year after the colon removal very well because I was on a lot of drugs and I was getting treated for colon cancer. 

Thank you Sara Marie.

@Truc posted:

---

Thank you Sara Marie.

I would repost your question saying, "I am afraid and I need help!  It is 6 months after takedown: I keep losing weight and now I am losing hair."  I think people think from the title that you want to lose weight and they're not reading that you need help.

Thank you so much for correct my English; it is 3 months after take down.

@Truc posted:

Thank you so much for correct my English; it is 3 months after take down.

Oh yes.  Sorry for the incorrect information.  I know people will have lots to tell you about this.

@Truc Can you tell us about your appetite? Do you know if you are eating well, or eating enough? What sorts of foods are you eating? Are you very active and exercising? Sometimes people lose weight because they stop eating enough. Sometimes they lose weight because their body isn’t absorbing the nutrients from the food they eat. Sometimes people lose weight because they are very active and their eating doesn’t keep up with what they need.

This may be why you're losing hair (it was for me, but it grew back in 4 months after surgeries):

https://my.clevelandclinic.org...86-telogen-effluvium

I also lost 50 lbs due to surgeries and stress from divorce. 10 years later, I now need to lose weight

@ Hi Scott , Thank you for your questions. I think I am not eating enough, and my body isn’t absorbing the nutritions.

What is keeping you from eating enough?

Hi, first of all I hope you start feeling better soon.

my experience with takedown is a little longer and I am no longer loosing weight.

I lost like 12 kg / 26.5 lb after the operation permanently and bit more on my lowest point. 4 months after takedown is relatively short and if the direction is good (towards progress) my experience is that some of the weight loss is permanent but it stop at some point.

off course always check your doctor if you are concerned

@Truc

It does take time to gain weight back, but the fact that you keep losing weight and hair is not typical. It might be good for you to consult a dietician with j-pouch experience who may be able to guide you about what to eat.

In the meantime chewable multivitamins like Flintstones brand would be a good idea, especially if you are still on a low fiber diet. I'll list some of the things that helped me to gradually return to my pre-illness/ pre-surgery weight.  Others may have different suggestions.

It's important to get enough protein.  I ate lots of roast chicken. Pork cooked until it fell apart.   Eggs. Plain Greek yogurt. Cottage cheese.  I learned to stay away from sugar, white flour, pasta that can be hard to digest. I picked vegetables carefully and ate them sparingly.  I recall asparagus tips, very soft green beans, and baked potatoes were good for me. And small amounts of acorn squash also ok.  And cooked spinach - also very small amounts.

My dietician suggested I make my own shakes with unflavored whey protein powder. I used bananas, peanut or almond butter, nut or cow milk with Jarrow brand protein powder. They were delicious, and the hardest thing was not drinking too fast.  

i also made rice pudding with almond or cow milk or a combination, but very little sugar. I digested it well and it added calories.

The other thing that worked for me early on was cream of wheat cereal which is enriched with vitamins calcium and iron and easy to digest. A little banana added to sweeten it.  And oatmeal - quick cooking variety - cooked longer than the instructions say  and with lots of liquid so it was very soft- really helped with output consistency and frequency.  

Hi AMB; thank you so much for your advice, I am still on low fiber diet.