Yes. Same here. Onion rings anything fried  gives me diarrhea malabsorption issues

Those foods aren't digestion friendly fot the jpouch population

My pouch is 22 years old soon. Anniversary from.1 step procedure is October 15 2001.

I still consume the fried stuff

Len

I digest fat just fine. Fat digestion doesn't really need a colon, and doesn't have a lot to do with a J-pouch, but there are plenty of common non-pouch-related things that can make it more difficult. Plenty of J-pouchers will also have those issues.

@Scott F posted:

I digest fat just fine. Fat digestion doesn't really need a colon, and doesn't have a lot to do with a J-pouch, but there are plenty of common non-pouch-related things that can make it more difficult. Plenty of J-pouchers will also have those issues.

I have seen so many doctors and have had so many systemic health issues. I am starting to wonder weither it could be from living in a moldy house, I know there is a lot of information on that in the past years. Also sibo can cause BAM, but I have not have any luck with antibiotics or other treatments which makes me suspect something else is behind all my symptoms. I did test positive, but never responded to all the different treatments.

@Len78 posted:

Yes. Same here. Onion rings anything fried  gives me diarrhea malabsorption issues

Those foods aren't digestion friendly fot the jpouch population

My pouch is 22 years old soon. Anniversary from.1 step procedure is October 15 2001.

I still consume the fried stuff

Len

How do you deal with bile acid malabsorption? Psyllium husk, cholestyramine or?

Neither. I just get diarrhea when I eat fried foods and i drink alot if water

@Len78 posted:

Neither. I just get diarrhea when I eat fried foods and i drink alot if water

Is this just like fries, onion rings and deep fried foods or is the same for butter and like fatty meat?

I am OK with Meats. I eat ribs. I dont add butter to foods

It's not the fries for me it's onion rings chinesee food

J

@Len78 posted:

I am OK with Meats. I eat ribs. I dont add butter to foods

It's not the fries for me it's onion rings chinesee food

J

Thanks!

I cannot have any more than a small portion of red meat or fried foods.

Anything more will lead to diarrhea and severe butt burn.

Plant enzymes might help with the fat digestion.  I take them when I ingest stuff that's more difficult, like oily stuff, protein and nightshades.  I also take psyllium before each meal and that helps slow down the digestion and reduces the watery stools, too.

@New577 posted:

I cannot have any more than a small portion of red meat or fried foods.

Anything more will lead to diarrhea and severe butt burn.

That sucks

@Sara Marie posted:

Plant enzymes might help with the fat digestion.  I take them when I ingest stuff that's more difficult, like oily stuff, protein and nightshades.  I also take psyllium before each meal and that helps slow down the digestion and reduces the watery stools, too.

Thanks! I have tried some digestive enzymes, but they all give me diarrhea sadly. The psyllium husk I use though.

@Former Member posted:

Thanks! I have tried some digestive enzymes, but they all give me diarrhea sadly. The psyllium husk I use though.

I'm curious about what you used! 

How do I shut off constant notif7catins when a new poster replies

It goes right ti my phone

I don't want to click the site every minute when someone responds t8 the thread

I am a little concerned that this thread is going in the direction of blaming the J Pouch for issues that actually have other causes. Over the years I have seen such "blame game" threads on any of number of issues.

I have had a J Pouch for 30 years and initially I had no problems eating fats, proteins, or anything else. As we all age, our digestive systems change. I now have problems digesting some foods, where no such problems previously existed when I got my J Pouch. Guess what happened, I got older, and GI tract got older and changed. I find that I have acid reflux with certain foods, especially dairy but sometimes with fried foods as well. I now keep a stash of Tums both at my office at home, because for me they are effective in combatting acid reflux. It's mainly with dairy but some fried foods.

Red meat is no problem. Onions, Chinese food, no problem. I have had a problem with red wine (tannins), from Day 1 with the J Pouch but that was the only identifiable thing that was a problem from J Pouch Day 1.

My father, who doesn't have a J Pouch, has also seen his digestion of many foods change as he got older. He has lots of problems with anything spicy, and with some fried foods as well. It's just the aging process. He didn't have the same issues years ago. I think as well the way we secrete enzymes may change. In many cases this may be due to other factors not being discussed here.

@Len78 posted:

How do I shut off constant notif7catins when a new poster replies

It goes right ti my phone

I don't want to click the site every minute when someone responds t8 the thread

Not sure, sorry!

@CTBarrister posted:

I am a little concerned that this thread is going in the direction of blaming the J Pouch for issues that actually have other causes. Over the years I have seen such "blame game" threads on any of number of issues.

I have had a J Pouch for 30 years and initially I had no problems eating fats, proteins, or anything else. As we all age, our digestive systems change. I now have problems digesting some foods, where no such problems previously existed when I got my J Pouch. Guess what happened, I got older, and GI tract got older and changed. I find that I have acid reflux with certain foods, especially dairy but sometimes with fried foods as well. I now keep a stash of Tums both at my office at home, because for me they are effective in combatting acid reflux. It's mainly with dairy but some fried foods.

Red meat is no problem. Onions, Chinese food, no problem. I have had a problem with red wine (tannins), from Day 1 with the J Pouch but that was the only identifiable thing that was a problem from J Pouch Day 1.

My father, who doesn't have a J Pouch, has also seen his digestion of many foods change as he got older. He has lots of problems with anything spicy, and with some fried foods as well. It's just the aging process. He didn't have the same issues years ago. I think as well the way we secrete enzymes may change. In many cases this may be due to other factors not being discussed here.

Well if you are correct and other causes is to blame then that’s certainly good news for me. Just gotta work on those and find out exactly what they are. I am 23 so I reckon things haven’t changed all that much yet as with you, but other causes then seems to be the culprit. Thanks!

@Sara Marie posted:

I'm curious about what you used!

I just used one from my local health store where I live in northern europe and the other one was Gold Digest enzymedica something

Fredz,

I am not saying the J Pouch isn't the cause, I am just saying don't assume it is the cause when it could very well be something else. It is possible that J Pouch surgery may have had some impact on your enzymes, but new pouches can have all kinds of problems digesting all kinds of things that  changes over time. Things may get better for you, or not. Good luck with it.

Fredz,

you may try foods to strengthen digestive powers, like bitter stuff. There are also supplements with milk thistle (a liver tonic) that could help to improve the liver's function and thus fat digestion.

@Len78 you can uncheck the option to receive notifications about posts where you participated in your member profile. Go to your profile pic in the upper right corner, then in the pop-up menu "Your settings" --> uncheck "Follow Content, When You Comment/Reply".

@SteveG posted:

Fredz,

you may try foods to strengthen digestive powers, like bitter stuff. There are also supplements with milk thistle (a liver tonic) that could help to improve the liver's function and thus fat digestion.

@Len78 you can uncheck the option to receive notifications about posts where you participated in your member profile. Go to your profile pic in the upper right corner, then in the pop-up menu "Your settings" --> uncheck "Follow Content, When You Comment/Reply".

I have tried bitters and so many different things sadly. I just seem to be one of those who reacts to everything, which is why I suspect mold/cirs might be behind my issues. Thanks anyway

I also have trouble with fried foods and also with fatty meat slow cooked in a crockpot 😩. I have noticed that as time goes on I can tolerate it more. I am 3 years post takedown. Hopefully it will continue to improve as I love crockpot cooking.  Isn’t this Jpouch life just wonderful!!!…

@Ryan138 posted:

I also have trouble with fried foods and also with fatty meat slow cooked in a crockpot 😩. I have noticed that as time goes on I can tolerate it more. I am 3 years post takedown. Hopefully it will continue to improve as I love crockpot cooking.  Isn’t this Jpouch life just wonderful!!!…

Very good to hear that you are able to tolerate it more though! Hopefully I will be able to tolerate it too soon.

I follow a keto like diet with lots of protein and fat.  I found that my j-pouch is very happy with this as opposed to a high carb intake.  My body definitely did not appreciate that approach.  Everyone is different and we must all listen to our (usually) smart bodies.  J-pouch for 10 years this year.

I think we would all be better off with low carb/fodmap type diets.

however, i am unwilling to do that. I live in a narrow lane food wise. Cookies, cake, sweets is one my few pleasures in life. I am not giving it up, even though I know it’s not great for my situation.

as long as a food does not cause me to have jpouch distress it’s in the “I can eat it”column!

@Jaypea posted:

I follow a keto like diet with lots of protein and fat.  I found that my j-pouch is very happy with this as opposed to a high carb intake.  My body definitely did not appreciate that approach.  Everyone is different and we must all listen to our (usually) smart bodies.  J-pouch for 10 years this year.

I was amazed that some are able to do keto with a jpouch. What are you sources of fat and how much of it do you eat per day?

I use high fat milk products like heavy cream.  I use butter, olive oil, and avocado mainly.  I don't keep track of how much I eat daily.  That is too much of a chore.  I eat what I want, when I want.  I try to follow no carbs but that is tough to do.  Being regimented with my diet can lead to all kinds of unhealthy habits for me so I simply do my best and have had fabulous results so far.  Better sleep, no joint pain, and increased energy.  Works for me.

@Sara Marie posted:

Plant enzymes might help with the fat digestion.  I take them when I ingest stuff that's more difficult, like oily stuff, protein and nightshades.  I also take psyllium before each meal and that helps slow down the digestion and reduces the watery stools, too.

I'm replying to myself to report to this group that I ate a lot of fresh tomato yesterday for lunch and it blew through the psyllium and digestive enzyme, so that didn't work at all this time!  Watery tomato stool!  But it was fine after it passed through, and was not enough to cause butt burn.  I don't normally eat tomatoes but I'm taking care of someone's garden while they're out of town and they have some of the most wonderful beefsteak tomatoes that I can't resist.  They'll be back soon and the temptation will be over with....

Oh, tomatoes and my J-pouch do not get along.  The first time I had a huge feed of them I thought I was having a massive GI bleed....ha ha ha.  Took a sec then remembered what I had eaten.

@Jaypea posted:

I use high fat milk products like heavy cream.  I use butter, olive oil, and avocado mainly.  I don't keep track of how much I eat daily.  That is too much of a chore.  I eat what I want, when I want.  I try to follow no carbs but that is tough to do.  Being regimented with my diet can lead to all kinds of unhealthy habits for me so I simply do my best and have had fabulous results so far.  Better sleep, no joint pain, and increased energy.  Works for me.

That’s amazing! Do you use imodium or psyllium husk to bulk stool?

And are you able to tolerate milk? Or other dairy products?

Milk and dairy products that are very high fat have less lactose than their low fat cousins.  With the high fat content you don't need as much to be satisfied either.  I do not take any immodium or bulking agents.  My stools are pretty much liquid all the time and that's absolutely fine with me.  I manage without any problems with dehydration or electrolyte imbalances.  I am one very very lucky j poucher.

@Jaypea posted:

Milk and dairy products that are very high fat have less lactose than their low fat cousins.  With the high fat content you don't need as much to be satisfied either.  I do not take any immodium or bulking agents.  My stools are pretty much liquid all the time and that's absolutely fine with me.  I manage without any problems with dehydration or electrolyte imbalances.  I am one very very lucky j poucher.

I was lucky with the j-pouch for a long time that way, too.  I was fine with the liquid stools, but slowly over time, I started getting nutrient deprived.  Just make sure to pay attention! 

@Len78 posted:

How do I shut off constant notif7catins when a new poster replies

It goes right ti my phone

I don't want to click the site every minute when someone responds t8 the thread

Go to the top of this page. Click on the 3 lines on the left. Then click on your name at the top. Then click on "your settings". Then see the "default notifications." Under default notifications is a sentence saying something like "change your notifications here". Click on that part of the sentence, and you should get a list of notification options. Hope this helps!

Hi all. I have had these same issues as well. I had my pouch formed in 2004, so it’s been 20 years. The entire time I have never been able to eat any fruit (even cooked or peeeled), vegetables, any fast food, greasy food, dairy, tomatoe sauce, nuts or nut butters of any type, any junk food such as popcorn, corn chips, potatoe chips, pretzels etc, ketchup, carbonated drinks and truly any drink with sugar or corn syrup. I drink nothing but water, and live on rice (white only as brown wrecks me), eggs, chicken, and only recently have I actually been able to tolerate lean organic hamburgers. I have identified and eliminated food allergies prior to having the j pouch. Wheat, milk, yeast, and oats were amongst my worst allergens and have all been eliminated. I’m on a pretty strict gluten free diet. The surgeon who performed the surgery was one of the very best in New York City. He told me I’d be able to eat whatever I wanted aside from having to watch out for high fiber items, seeds and nuts. It was one of the reasons that pushed me to have the surgery. However, that was 110% inaccurate. I still have diarrhea many times a day, but this is as good as I can make it. If I deviate and eat the bad items I will develop chronic pouchitis. For me, it’s not worth it, and I am eating way healthier than I would if I didn’t have this condition. I also never consume alcohol if any form. I am also underweight, albeit I eat a very high number of calories per day. I’ve also developed Sjögren’s syndrome and have VERY painfully dry eyes and mouth. I also feel fatigued and my joints, knees especially, are often sore. I’ve also developed chronic daily headaches that have existed daily for the last 3.5 years and I had a deep vein clot in my leg (that I was unaware of) that traveled to each lung causing dual pulmonary embolism last September. It was an unprovoked clot and I have to take xarelto for life as a preventative. My mental health has been severely challenged, although I’ve always been a stronger, glass half full person. I’m on an antidepressant the last 4 months because the stress of managing this body is exhausting and never ending it seems. I feel for anyone with a health condition and for all my fellow j pouch era who know all to well what it’s like. I wish there were better options. I have also come to learn that once you have 1 autoimmune condition, you’re vulnerable to having others as I have. I’m very dedicated to my diet and routines, yet I still have declined in terms of my health and I’m only in my 40’s. Do any of you suffer from multiple conditions like Sjögren’s or blood clot disorders? My blood dr said my protein s and c deficiency caused the clot, and are not deficiencies I was born with. He said people with colitis are more likely to develop blood clots and clotting disorders and considers my protein deficiencies acquired. I take 6-8 immodium a day and cholestyramine 2x a day to help bind bile salts and bind me. It’s comforting to know we are not alone and I hope we all keep finding new ways to thrive.

@Ittakesmorethanguts posted:

Hi all. I have had these same issues as well. I had my pouch formed in 2004, so it’s been 20 years. The entire time I have never been able to eat any fruit (even cooked or peeeled), vegetables, any fast food, greasy food, dairy, tomatoe sauce, nuts or nut butters of any type, any junk food such as popcorn, corn chips, potatoe chips, pretzels etc, ketchup, carbonated drinks and truly any drink with sugar or corn syrup. I drink nothing but water, and live on rice (white only as brown wrecks me), eggs, chicken, and only recently have I actually been able to tolerate lean organic hamburgers. I have identified and eliminated food allergies prior to having the j pouch. Wheat, milk, yeast, and oats were amongst my worst allergens and have all been eliminated. I’m on a pretty strict gluten free diet. The surgeon who performed the surgery was one of the very best in New York City. He told me I’d be able to eat whatever I wanted aside from having to watch out for high fiber items, seeds and nuts. It was one of the reasons that pushed me to have the surgery. However, that was 110% inaccurate. I still have diarrhea many times a day, but this is as good as I can make it. If I deviate and eat the bad items I will develop chronic pouchitis. For me, it’s not worth it, and I am eating way healthier than I would if I didn’t have this condition. I also never consume alcohol if any form. I am also underweight, albeit I eat a very high number of calories per day. I’ve also developed Sjögren’s syndrome and have VERY painfully dry eyes and mouth. I also feel fatigued and my joints, knees especially, are often sore. I’ve also developed chronic daily headaches that have existed daily for the last 3.5 years and I had a deep vein clot in my leg (that I was unaware of) that traveled to each lung causing dual pulmonary embolism last September. It was an unprovoked clot and I have to take xarelto for life as a preventative. My mental health has been severely challenged, although I’ve always been a stronger, glass half full person. I’m on an antidepressant the last 4 months because the stress of managing this body is exhausting and never ending it seems. I feel for anyone with a health condition and for all my fellow j pouch era who know all to well what it’s like. I wish there were better options. I have also come to learn that once you have 1 autoimmune condition, you’re vulnerable to having others as I have. I’m very dedicated to my diet and routines, yet I still have declined in terms of my health and I’m only in my 40’s. Do any of you suffer from multiple conditions like Sjögren’s or blood clot disorders? My blood dr said my protein s and c deficiency caused the clot, and are not deficiencies I was born with. He said people with colitis are more likely to develop blood clots and clotting disorders and considers my protein deficiencies acquired. I take 6-8 immodium a day and cholestyramine 2x a day to help bind bile salts and bind me. It’s comforting to know we are not alone and I hope we all keep finding new ways to thrive.

I also got my pouch in 2004.  I have also had a lot of sensitivities to multiple types of food and everything just rushed through for about 18 years, then 2 years ago, I learned psyllium isn't just for constipation, it's actually excellent for slowing down guts if they're moving too fast. I have noticed that a heaping teaspoon of psyllium before meals (mixed with water) slows down my digestion and increases my absorption of nutrients.  I use plain old organic, fine ground psyllium husk.   I still have watery stools on and off, of course, but in general, the food is more digested.  I also take digestive enzymes, starting recently, which has helped with gas and bloating with certain foods and I believe it has also helped with absorption of nutrients.

That’s great that the psyllium really helps you. I may need to explore it. I tried digestive enzymes but I had some stomach pain. The guy in the health food store said it’s the best one, but it did have a small amount of acid in it and maybe that’s what the issue was.

@Ittakesmorethanguts posted:

That’s great that the psyllium really helps you. I may need to explore it. I tried digestive enzymes but I had some stomach pain. The guy in the health food store said it’s the best one, but it did have a small amount of acid in it and maybe that’s what the issue was.

There are multiple types of enzymes and it's good to try more than one, I think.  Certain enzymes are geared towards certain types of food.  For example, Beano (or generic version) targets beans and cruciferious veggies.  I have a plant enzyme formula that targets grains and fats more, and one that is better for meat. I don't know yet which ones work except the grains one seems to help with millet and the generic beano seems to work for beans. I get better stools, less food fragments in the stools, and less gas and bloating.  And my food gives me more energy when I have the right enzyme either before or with it.