Hi duck11. As long as you’re happy with your ostomy, why go looking for possible problems?  I love my ileostomy and would never consider going back to a j- pouch. I know how miserable you were with your pouch, so if you’re happy with what you have stay healthy and keep it.

I am just exploring all options, I like to have all the info before deciding. I appreciate your ostomy has been good to you but I’ve had a few issues worth considering in the quality of life department, although 8m leaning towards keeping it. I have to have major surgery either way to make it an end ostomy instead of a loop and take out my old j pouch, so it isn’t choosing between surgery vs no surgery, but instead choosing between 2 dif surgical options.

Nothing wrong with exploring your options. Good luck with making this difficult decision.

As far as surgeons go, dies anyone have experience with ccf dr Scott steele at Cleveland? I too am now considering removing j pouch. My best surgeon out at ccf retired. Any info would be greatly appreciated.  & best wishes on your decision too.

Thank you.

Hi! I just got my second J-pouch in September. I have a temporary ileostomy right now while it heals.
Long story short, I went to Cleveland Clinic for a second opinion after having my takedown on 7/12/22 I suffered with lots of pain, unable to empty, blood and burning. I was told it was pouchitis. When I got to Cleveland Clinic, they realized my j-pouch was twisted 360 degrees and was leaking. I had open surgery to remove my current J-pouch, make a new one and now have a temporary double barrel.
I cannot recommend my surgeon Dr. Holubar enough. He is amazing and took great care.