Thank you.  Very interesting.  Hoping to watch it but not sure if I can watch it all.   Thanks again

There are at least two sessions that might be of particular interest to some folks here. This Friday, Sept. 16 at 2 PM (Eastern Daylight Time) is a 20-minute session called “When a Pouch Patient Can’t Poop.” On Saturday, Sept. 17 at 9 AM EDT is “Medical Treatment of Acute and Chronic Pouchitis.”

Thanks for the heads-up!  I registered for this.  I can't go to all of it, but I think it could be interesting if the doctors don't use too much jargon. It seems like it's supposed to be doctors talking to other doctors, so I'm prepared for some jibberish.  I wish they were recording it so I could re-watch, pause and look up terms that are unfamiliar....

It's a rare medical conference that permits patients to attend, so it's not dumbed-down. They do record, or did last time.  The link from that recording was posted here and I imagine this one will be as well.  

you can still sign up at: https://www.eventleaf.com/Atte...-9066c1b0c6-79270894

NB: the registration asks your profession and i put in: k-pouch patient and my institution is columbia.  it always goes through ok

it is friday and saturday afternoon.  always easier to get the recording if signed up.  once registered you will get the agenda.  then pick what you wish.

i've gone to two and find them helpful.  dr. shen likes to have comments from patients.  last time i collected some comments and submitted them.  willing to do so again.

stay well, jan

Huh....I registered and didn't get anything back from them.  Can you tell me what email address they sent you this from so I can search my junk mail?

sara marie --nor did i get one.  i think they will send a link prior to the event.  sorry, but don't recall logistics from a year ago!  if i don't get a link by thursday i'll contact them and post info.  glad you are watching as interesting to hear discussions.  honesty i think they should have a patient participate.  jan

Definitely should get patient perspective since, you know, we tend to be the experts on how these things work (or don't) in real life!

notify@eventleaf.com Is the email address that delivers the registration confirmation

The jargon was pretty thick during yesterday’s sessions, but a few slides seemed like they might be of interest to some folks here. The first slide lists symptoms and diagnoses associated with pouch emptying problems, and the second lists possible treatments. The third slide is a bit confusing, but speaks to various circumstances around periodic pouchoscopy intervals.

There were three very useful “general interest” slides about pouchitis during this morning’s session. I’ve attached them here for folks who might find them interesting or useful.

Here’s the final slide I selected from the talks. It spells out the ways 1-, 2-, and 3-stage J-pouch procedures are broken down.

Legend

• TAC: Total Abdominal Colectomy
• DLI: Diverting Loop Ileostomy
• IPAA: Ileal Pouch Anal Anastomosis
• TPC: Total Proctocolectomy