I was 19 in 1991 when I had my colectomy and J pouch surgery. I'm 51 now and things are good. We didn't have the internet when I had my surgery, so I'm so glad to be a part of group that understands what I deal with on a daily basis! I don't know anyone else who has had the surgery I had. I have had great luck with my J pouch. I also had 2 kids, for any women wondering how that would go. I'm excited to learn more and share my experiences.
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Welcome Ingrid, I had my total colectomy 41yrs ago, when I was 18.
Glad to hear your doing well, I’m heading to the Stelara stage at the end of this month.
Welcome Ingrid! I’m 62 and have had my pouch for 22 years. I don’t know anyone either with a pouch except for all these wonderful people here. I’m so grateful for this forum.
Taking VSL#3 and Metamucil wafers daily to keep it all moving smoothly.
Hi! My DH has had a j-pouch for 28 years. Welcome!!
So glad you joined, Ingrid. On the difficult days it is wonderful to hear from folks who're long term pouchers with happy results.
@Mrs P posted:Welcome Ingrid! I’m 62 and have had my pouch for 22 years. I don’t know anyone either with a pouch except for all these wonderful people here. I’m so grateful for this forum.
Taking VSL#3 and Metamucil wafers daily to keep it all moving smoothly.
Hello Mrs P. How long have you been taking VSL#3?
Hello Muks,
I have been taking VSL #3 for approximately 6-7 years. Maybe a little longer, not too sure. I take 1 capsule twice a day. It is expensive. My GI doc often gives me coupons or samples. There is a member on this site, Scott, who has jumped through the hoops to get it paid by his Insurance. I’ve yet to take the time to do that.
All the best to you,
Mrs. P
I took VSL#3 when I had pouchitis in 2010. Do you anyone who has benefited by the capusules in the long run? I am unsure if should continue taking it for the rest of my life.
I am 32 and living with a j pouch for 20 years.
I don't even know what VSL#3 is. I had pouchitis a few times when I first got my pouch, but haven't had any issues since then (1991)
I take a very large amount of VSL #3, equivalent to (I think) 32 capsules per day (it’s just 4 prescription-strength packets). If it didn’t help keep my pouchitis under control I wouldn’t take it, so I recommend figuring out if it’s helping before committing to long-term use.
@Ingrid posted:I don't even know what VSL#3 is. I had pouchitis a few times when I first got my pouch, but haven't had any issues since then (1991)
That’s great to hear!
my issues with inflammation started about 30yrs after.
I wish I could just take a pill to make it go away, but looks like it’ll be injections instead. 🤞