I live in Bowling Green Ky which is south central area near Tennessee line. 65 miles from Nashville, 120 from Louisville. Looking for assistance in finding post operative, ongoing care for jpouch and associated problems. Anyone out there in this area that has a doctor/nurse they can recommend?
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I would first find the university/research hospitals that are driving distance up to 1,5 hr. I drive that much to see my surgeon and the GI. Then, I would look at the professors at the GI departments that see patients (not all do, some just do research), and mention IBD among their research/clinical interests. Then, I would look at their publications in Google scholar to see which ones published on IPAA, pouchitis, etc. If none has, which is likely, then I would pick the one who published most and also most recently on IBD in general. Ones who publish the most and most recently follow the recent literature closely, so they are the most knowledgeable about the most recent developments in this field.
These doctors call the regular doctors “community doctors”. From my experience, one needs a research Dr, not a community Dr with a j-pouch, because we are all part of a very large scale experiment. They are discovering a lot about us every year.
Thank you!
Please check this out:
https://www.j-pouch.org/topic/...tor-for-your-j-pouch
I just posted this after I responded to your question. There are some very useful responses there.