Calmo
Visbiome

Skip to main content

M

My GI Doctor Dr J Garsten has retired. For 27 years he has helped me through this struggle from getting a total colectomy in 1995 through all the problems and ups and downs that go along with it. I have had fistulas, strictures and just about everything you can think of. He always had the latest news , treatments, and what was on the horizon for UC and Chrons , anything that would make my life better.

I am trying to follow his advice of going to a Doctor that was in his practice. I recently went to a regular appointment with him and he did not even touch me. He was more interested with typing on his computer.

I am in the midst of a pretty bad flare up. I am on the Prednisone, Cipro, and Flagyl regimen that knocks me to my knees but it works.

I have been on Humira for about 8 years now and before that was on Remicade. Now it was time to refill my prescription for Humira. I expected the normal PPD skin test for TB, Instead a QuantiFeron Gold TB blood test was ordered. It showed that I had TB. The Doctor told me that it was latent TB and if I took the Humira there was a chance it could become active.

After doing some reading the QuantiFeron Gold TB blood test is not accurate on people with immune disorders. I also read that there is a 33% chance of false positives. How come after being on Remicade and Humira TB was never an issue. I haven't traveled anywhere different. In my reading I think there was 62 people in Connecticut that were diagnosed with TB. Was I unlucky enough to come into extended contact with one of these people?

I would like to see another GI Doctor in CT that I can visit and talk to all of this about.

Does anyone have or know of a Doctor in Connecticut that they would recommend?

I apologize in advance for the long post.

Thank you for any help you can provide.

Bob

Replies sorted oldest to newest

CTBarristerCTBarristerMember

Bob, where in CT are you? I live in the New Haven area. I would recommend my GI Dr. Myron Brand except he is around 70 years old and I fear he will retire soon (within 5 years), although the guy is a total workaholic and claims he has no desire or interest in retiring.  You might want to see him in any event for a consultation. He is very experienced with pouches and has a number of pouch patients, including me.

CTBarrister
C CTB23Member

Hi Bob,
My surgeon had recommended Dr. Marano to me a while back, but I really haven’t needed anyone.  I believe he is in the same practice as Dr. Garsten.  My husband went to Dr.  Bhupinder Lyall and liked him very much, although he only had his colonoscopy with him.  I also met him at the time and liked his manner, nice guy, easy to talk with.  The guy I went to prior to surgery was Dr. Leventhal, but I personally would not recommend him.  I think he’s just too busy and maybe not as thorough because of that.  Not sure that helps much.  Good luck in your search.

C
J jan15Member

If you don't mind traveling to NYC the GI group at Columbia is fantastic.

In Columbia's last Symposium they did mention another drug that has come down the pike since the Humerias and Remicades.  As I have a K pouch that lecture was of interest, but didn't take notes.  There is another Symposium next week, and if you register you can get the video.  Might not be at a convenient time.  They are excellent.  Below is info and link.  Register as a patient. Prior to the 14th an agenda will be sent, which helps to pick appropriate lectures. Although not listed as intended audience, one of the doctors told me they like patients to attend and be educated.  (If you do attend, please send me comments so I can forward them to one of the doctors involved.) Please get back to me w questions.  Jan

https://www.eventleaf.com/Atte...-c14f51049b-79270894

The Interventional IBD Symposium
January 14 - 15, 2022  ·  Live- Virtual, CME
12:50 PM - 1:00 PM (ET)
REGISTER
Program Overview
Inflammatory bowel diseases (IBD) consist of two primary phenotypes, Crohn’s disease (CD) and ulcerative colitis (UC). Despite advances in medical treatment in IBD, disease-associated or IBD surgery-associated complications (such as strictures and fistulas) are common.  Interventional IBD or therapeutic endoscopy has an expanding role in the treatment of disease and surgical complications. Endoscopic therapy offers more effective than medical treatment and less invasive than surgery, for the management of IBD-associated structural complications. Endoscopic therapy has been explored and used in the management of strictures, fistulas/abscesses, colitis-associated neoplasia, and post-surgical acute or chronic leaks, and obstructions. The endoscopic therapeutic modalities include balloon dilation, stricturotomy, stricturoplasty, stent placement, fistulotomy, fistula injection and clipping, sinusotomy, endoscopic mucosal resection, and endoscopic submucosal dissection. With a better understanding of the disease course of IBD, improved long-term impact of medical therapy, and advances in endoscopic technology, we can foresee interventional IBD will become an integrated part of the multidisciplinary approach for patients with complex IBD.  This is a joint venture of Columbia University Irving Medical Center, NewYork Presbyterian Hospital, and the Global Interventional IBD Group. This CME-accreted conference will use “the Columbia Interventional IBD Symposium” as a logo from now on. It will run a full-day Zoom-based conference on January  14-15, 2022.
Learning Objectives
  • Discuss familiarity with the current status of biological therapy in IBD
  • Define principles, indications, techniques, and outcomes of endoscopic therapy for strictures, fistulae, and surgical leaks in IBD
  • Identify familiar with principles, diagnosis, and management of colitis-associated neoplasia in IBD
  • Discuss familiarity with rescue strategies for endoscopy-associated complications
J

Add Reply

Views: 246
Copyright © 2019 The J-Pouch Group. All rights reserved.

Membership Required

We're sorry. You must be signed in to continue. Sign In or Register
×
Are you sure you want to remove from your Block List?
×
Loading...
×
When you block a person, they can no longer invite you to a private message or post to your profile wall. Replies and comments they make will be collapsed/hidden by default. Finally, you'll never receive email notifications about content they create or likes they designate for your content.
Note: if you proceed, you will no longer be following .
×
Link copied to your clipboard.
×