I had my surgury almost 30 years ago. i have Pouchitis all the time. I take Amoxicillion daily, it used to work, but now it seems the only thing is Cipro! It scares me because of the tendon issue. Does anyone else deal with this?
I’ve been on Cipro daily since 2008. My tendons are fine, and my pouchitis is well controlled. I carefully experimented to find the lowest effective dose, to minimize the risk. I did have to add Flagyl about 6 years ago when Cipro alone stopped working adequately for me.
A reasonable alternative would be to try one of the biologic medications. That’s certainly what I’ll do if Cipro+Flagyl stops working. Some people (or their doctors) prefer long term biologics to long term antibiotics, and that’s a fine choice, too. Living with out of control pouchitis would not be acceptable to me.