Hi all ❤
I am 4 months post op from my ileostomy closure after having my entire colon removed in April due to severe UC. I have experienced all of the "normal" scenarios I planned on, thanks to all of you wonderful people who have helped out immensely throughout this process!
At 4 months out, I am not at all where I thought I would be. I thought I would be back to work full time (still healing) and for the most part, on track to my "new normal" life....but I am nowhere near that. My doctors have reminded me I was extremely ill going into both surgeries so this would all take longer, but I feel like my progress has come to a hault. I recently saw my surgeon (who has been wonderful) for a flex sigmoidoscopy because of the increasing pain/issues I'm having. He found remaining inflammation from recent pouchitis and took some biopsies, but overall was reassuring.
Although he has been encouraging, I still find myself feeling very down lately, wondering if this is as good as it is going to get. I miss being able to live my life- as I know others must feel going through this (right!?). I work hard to stay positive and upbeat through different tools (meditation, breathwork, mindfulness...), but have been struggling as of late. If anyone has any encouraging words, stories etc., it would really help get me back on the positive fighter path I was on before. Thank you.