I have lower left abdominal pain and groin pain on a daily basis. I have had a sigmoidoscopy and a CT scan that don't show any sores. My GI Dr says it is chronic pouchitis. Cipro does not help; it makes it worse with constipation. It is not diverticulitis and I had my J-pouch created in 2014. I never had pains like this and now I've had the pain for the last 7 months.
Has anyone had this and how did you stop the pain?
Thank You
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Just a vague guess, did you have an ultrasound for kidney stones?
@ SteveG - I did not have an ultrasound, just the CT scan back in Feb this year. Lately it has hurt more in the groin area. Dr just started me on Mesalamine pills.
It also depends on the kind of pain you have. You do not feel pain from a pouchitis except of the rectum cuff that can hurt from inflammation. But that does not fit to your description of lower left abdominal and groin pain. Pouchitis causes more frequent and fluid BM. Cuffitis hurts in a burning way an makes you feel you have to go to the toilet, like a permanent pressure.
Is it a stabbing pain? That would correspond to kidney stones.
Adhesions from surgery would be another explanation for abdominal pain. Just use the search function of this forum to get more background.
@SteveG - Thank You for your quick responses, much appreciated.
This feels like someone is squeezing my small intestine which makes me feel like I have to go to the bathroom. The groin pain feels like I fell hard on my back side. I had my pouch done in 2014 and this is the 1st time I have had pains like this.
I only take VSL#3 once a day. I started Mesalamine today; 4 pills a day
I just saw your post from April, that's a long time with those pains.
Jan also pointed towards adhesions, did you investigate into that direction? I never had that kind of problem. Does the pain change when you twist your body or massage your abdomen (as I would imagine with adhesions)?
@Funky26 posted:The groin pain feels like I fell hard on my back side.
Do you mean the steady pain some time after falling (not the acute pain when you just hit the ground)?
The pain is the after affect from a fall. It doesn't worsen if I twist my body.
I had a nice stretch for 2 months it didn't bother me and now it is back. The meds the doctor keeps trying are expensive ($189 for 1 month of mesalomine). I was rally hoping others had these type of abdominal pains so I could find a resolution. So frustrating.
If you think it is a pouchitis / cuffitis then try the mesalamine as your doctor said. But if there is no improvement after two weeks then switch to another med, consulting your doctor of course.
If Cipro alone does not help and causes constipation then a combination of Flagyl and Cipro (with a lower dose of Cipro perhaps) may do the job.
I still use budesonide (Entocort) to protect me from cuffitis, that's cortisone with a mainly local effect at the end of the small intestine / pouch. It is also not cheap, but my health insurance pays for it.
If the meds do not work, there is always biologics that can be used down the road. Definitely try everything else first if you can, like the meds mentioned above.
