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I had a sigmoidoscope yesterday and it was confirmed that I have a fixed 5mm stricture (1/4 inch)  at the anastomosis, which is the outlet of the pouch. The G.I. couldn't get the smallest scope through the stricture so now I am having a bowel ultrasound to determine if there is inflammation in the pouch and small intestine and then a surgical consult. I'm sure, at age 50, I will need to consider removal of the j-pouch but the G.I. is sending me for a surgical consult to discuss all the options including pouch revision. It will be a long time before I see the surgeon as my ultrasound is scheduled for Nov 8 (earliest available during covid - ugh).

Has anyone here had successful surgery to repair a stricture of this severity? If so, did it provide you with a better quality of life or only minimal benefits? I'd like to hear your experiences.

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GD Glenys DMember

Hi Jen, I had my pouch in 1992 and have had recurrent strictures at the anastomosis. The surgeon does a dilation of the stricture every 12 months and that seems to work. At one stage he was considering major surgery but then I started the FODMAP diet and the symptoms improved so much, no further surgery was needed. So it might be worth getting a 2nd opinion? Hope it all works out okay. Glenys

GD
S 1993SPouchMember
@Glenys D posted:

Hi Jen, I had my pouch in 1992 and have had recurrent strictures at the anastomosis. The surgeon does a dilation of the stricture every 12 months and that seems to work. At one stage he was considering major surgery but then I started the FODMAP diet and the symptoms improved so much, no further surgery was needed. So it might be worth getting a 2nd opinion? Hope it all works out okay. Glenys

Thank you for your response! Can I ask you if the stricture was ever this small and is it a balloon dilation or something else? I'm also passing lots of undigested food so perhaps low fodmap should be a consideration.

S

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